HEllo, its been some time since I have been here, I kinda forgot about it and just dealing with daily pain like everyone here.
Anyhow, I have the medtronic pain pump and last year I got my meds switched from morpine like 9mg a day. to Dilaudid now at 4.2mg a day.
Now I have told my Doc its not working as well, because well its been a year plus adn I know my body is use to it. So my pain levels are up high, 8-9 most days Im back to being in bed at least 18hrs of the day, my family again is suffering becaus of it, cant take care of home kids dogs, just cant do anything.
So I claled last week and said I need to come in iom in pain and I want him tio turn it up. They call back and said the Doc wont see me until my appointment, in 42 days, refill time. Last time I was there he also wouldnt turn it up and just gave me a Bolis dose, real quickl like .41mg in 30 sec. Had a good night sleep that night. But told he told me then I was again at high levels of meds adn he really couldnt turn it up much more.
So to all you out there does 4.2mg of Dilaudid in a 24 hour time period seem like alot in a pain pump?
Im so tired of this, I went through this on my morphine prior to changiong to Dilaudid and thought the Dilaudid wouldnt be like that. So am I at a high dose or is he full of it?
Im at the point where my pump is due to be changed out for a new one sometime in the next year, Im wondering if i should jut do away with it all and go back to patches and pills, not my first choice but seems like i had more freedom with them and sure was able to get what I needed for pain.
I just dont know? Is anyone using anything stronger or is there anything stronger? Any other drug that could be used in pump also with my Dilaudid that would help?
Im getting very frustrated and very down again about my life long struggle in pain again! 27 years of hell tends to wear you down!
Well its nice to be back with you all, the support here is great, we are the only ones that truly understand Pain and the hell it can unleash on ones life!
Thank you guys and gals!