Dear White Beard,
Good evening! Thank you so much for your reply. I really appreciate your support. How are you doing? Is the pain in your neck / back somewhat tolerable tonight? I sure hope you are able to find atleast a little comfort tonight.
You had alot of questions, so im gonna try to answer them all Unfortunatly, no, I do not have a diagnosis yet. But they are working hard to find answers. Yes, it is severe bone loss. In less than two years time I have lost much in spine mostly, but have learned in the last 6months that "it" attacks all areas of the body (teeth , etc.) All joint areas are severly inflammed. Which is why my doctors must remain in constant contact and must work effectivly together. Yes, I have many specialists, all very skilled in their respective feilds. Spine specialists, endocronologists, eye surgeon, oral surgeon, etc.... And apparently a few new folks who I will meet this month. Yes, I too dream and hope of effective treatment and diagnosis. I fear I havnt much left to "crumble" to then have "remove". Though my body has decided to age at an extremly rapid rate I assure you my heart knows no bounds and no age! The "mounting / growing" issues with my leggs came on very recently. As did the "severe" bone loss in the other areas of my body (IE: I lost all my teeth in 3 months flat, for example). I found out that the rate was very high, then the next week joined you guys here at healing well in June 2009. I cannot put in to words what a comfort everyone here has been. At times I feel alone and frightened, but, then I come here and well... Im sure know what I am trying to say.
Thank you so much for your kindness and support. It means so much to me.
Hey there! *huggs!* How are you doing? I came across another funny joke the other day. Hopefully I will remember to post it. I missed you too terribly! But after each surgical I have to take those dreaded meds that give me a case of the "lights are on, and noone is home!". Hehe I sure do appreciate the huggs!
Evening! How are you doing these days?? Dont worry about not being around much! I have been scarce myself Oh! You know my bumblebees have mommy talking like a pro now. Youd never know I just had all my teeth removed. Ill have to send a thank you note to Dr. Seuss! Oh, they make my heart smile as always Thank you so much for your prayers and care. It means so much! *warm huggs!!*
Good evening! How are you doing? Are you getting ready for Halloween? My girls are buzzing with excitement! I will have to bugg papa bear to dragg out our decorations soon
You had alot of questions and im gonna try to answer the best I can I have steroids injected to relieve the inflammation in the spine. When it is out of control I have to consume alot of protein because my body burns up so much trying to accomplish seemingly small tasks. Yes, the steroid series are very helpful. I have been tested for many differant auto immune but have not turned up positive. Yes, I can "see". about 4 months ago I had a protein broken up in my right eye, but they knew and expected at the time that the "spots" might increase and would also effect the other eye. They were just waiting for me to "say so". When the protein was broken up out of the right eye, I had 3 very small black spots. Now they are in both eyes. Say 10 or so in right and now 4 in left. Very small. Again, as with everything else, it seems this too, was expected. I feel, at times, that Im the last to know.
Your constant and unwavering support makes me wish more than anything that I could jump through the computer and tell you, in person, how much it means to me. Thank you so much! *warm huggs*
Hi there! I do hope you are relaxing this evening. How are things going with your tooth? .. I probably shouldnt ask since ill hopefully, catch up on the rest of my reading! but *warm huggs* And gosh, thank you for your kind words. I too, believe with all my heart that modern technology will soon provide the breakthoughs needed to effectivly treat someone in my position (dare I dream in my life time?). I do want you to know that though things are still progressing, the "inside me" is doing okay.
I have reasearched ways to package my jewlery and a found trading company that will sell at the "bulk rate" to me for my supplies. I really hope that I will be able to atleast help with the grocers bill at first, small stepps. But feel like really big goals for me. I am excited to be able to truly delve in to selling my jewlery come the new year.
You always have a way of bring a calm despite a hecktic world. Thank you so much for your care and understanding.
Hey There! *huggs* What are you up to? I am enjoying sitting on my #2 I might dip into the valerian root tea soon, its so nice to catch up with all of you.
The injections have brought the stiffness and pressure, with moderate ache, thank goodness! It is nice to breathe The fatigue has loosened its gripp aswell. The oral surgey was doing good, or so I thought... But, since the bone loss continues, there is debate over "plain jane" dentures til the bone loss can be effectivly controlled. Do not worry thou, my husband answered the phone for that one. Good thing to, the moment I heard.... you know I turned to mush and just cried. But! I remain hopeful, and it seems, my bone loss and "other symptoms" are going to be approached with new doctors in the mixx. Perhaps this is a blessing in disguise? So far thou, the jaw is "not showing signs of detioriation yet". *deep breaths* I have not lost hope the bone loss will eventually be controlled.
Thank you ALL so much for your support. It truly makes my heart smile. You ALL seem to make each step of this sometimes frightning journey easier. *warm huggs*
|TWO roads diverged in a yellow wood,
|And sorry I could not travel both
|And be one traveler, long I stood|