Posted 9/20/2009 8:10 AM (GMT -7)
You may remember that in March I was told about LDN (Low Dose Naltrexone) by the Dr. I used to work for! After much thought, research and discussion I decided "why not" and started on the medication at 3.0 mg. This is a drug that used at high dose 50 mg. is given to Drug addicts and Alcholics in treatment.
Studies have been done and it is used quite successfully for Fibromyalgia, Crohns, MS and recently CP has been added to the list. CP results are being documented at the present time.
I started on it in March and after a few weeks did begin to notice relief, the dosage is 1 at bedtime. The cost is about $38 a month.
I was enjoying SOME relief of the neck, low back and leg pain. I was able to cut down PM dose by 1-2 pills depending on the day.
In June I fell and injured yet again the low back and have had constant muscle spasm on the left side since. With the latest injury I began to feel the LDN was not doing what I hoped. I spoke with my Dr. and the Pharmacist and found out that the LDN can be taken up to 6.0 mg. dosage. The next recommended dose for me would be 4.5 mg. Coming from the Homeopathic field I asked the Pharmacist why would I want to jump from 3.0 to 4.5, why couldn't I go up to 3.5 mg. instead giving me some room to advance slowly before giving up on this treatment. She and my Dr. thought that was a great idea so on Aug 1 I started on 3.5 mg. 2 weeks into this new dosage has been amazing for me, although I still have pain it is so low at times that I am actually able to do things that have been out of my life for over 10 yrs. Grocery shopping alone (of course my husband is here ready to unload the car when I get home), blow my hair dry without taking several breaks, stand and cook a meal, put dishes away AND increased energy allowing me to meet and enjoy time with my friends.
If you read the LDN site info, it says that you must stop your Pain meds....I was told by the Pharmacist that, that is not true with CP, it is successful IF you are able to cut your dosage and begin to gain some function in your life. THAT is where I am at, some days are great and some days are good, some are still bad BUT overall my quality of life is so much better and with that my attitude as well!
The biggest change that occured and I am most grateful for is I am able to sleep through the night, instead of tossing and turning and getting up feeling worse then when I went to bed. Its a whole different life being able to REST at night. I still get up at 4-4:30AM but I am rested and refreshed.
Just had to share some good news with all of you! Now, if I can manage to stay on my 2 feet without falling for a while, I think I can be very happy being where I am right now!