Dear CP Family,
I have posted this in the "thyroid Forum" aswell, but am posting it here to. As you all know, I will be going to "findings" appointments next week. If it turns out I have Hypoparathyroidism, and they do not know cause, I will suggest UNM / Mayo Clinic. If they still do not know anything, I will suggest UNM/ Mayo Clinic anyway.
Maybe you guys can help, here is the post ~~>
I have a "findings" appointments next Monday, Tuesday and Wednesday of next week. I would like to be atleast a little prepared if I am told I do indeed, have Hypoparathryroisim. My research has turned up very little as far as causes. I have never had any surgeries in the neck nor have I ever undergone chemotherapy. So far, most atricles mostly talk about the "2 major causes". Neither of which I have. They do state "other rare causes" but do not go into detail. A friend of mine was mentioning something called Addison Disease? I sure could use some help with research.
I do, however, have a large range of issues starting with congenetial cataract (dont have diabetes), vision loss (black spots in both eyes now), weakeness, fatigue, wide spread joint pain, 1 day peroids, levoscoliosis (progressive with degeneration am only 5ft 5in was 5ft9 just 3yrs ago), all my teeth are gone now.... "crying" in throat, muscle spasims, tetany, diarreaha, kidney problems (more analysis is being done there), constant fever, memory loss, weight loss (i eat x5 per day 117=120lbs thou), hearing loss, uncontroled "jerking", insomnia, nerve damage.... theres more, but im kinda getting sad writing it all down.
If you know of someone who has hypoparathyroidism without the 2 major causes, or know of where more information could be found, I would GREATLY appreciate it. I need to be prepared for next week, if it is, indeed, the culprit. The last few years have knocked me flat on my #2, all this has happened so fast. The damage is happing so fast....
|TWO roads diverged in a yellow wood,
|And sorry I could not travel both
|And be one traveler, long I stood|