Welcome. I'm so sorry that you have so many pain issues. More on that in a minute. But I'm glad you joined the board. This is a really supportive place with many, many kind, compassionate members. I look forward to getting to know you better, and learning more about
I'm 36 years old, also an at-home mom; we have six sons, ages 5 to almost 15. I have very similar pain issues as you do - except the knee pain. Yep, it pretty much does cover the entire body...unfortunately!
While I'm glad you have a team of docs...I really wish you had someone to help you w/ your pain issues. What have they looked for in you? Did you have a fall or any type of injury that preceded your chronic pain? Have they looked at fibromyalgia? Shoot, you can have "chronic pain" just having "extreme migraines" and painful periods!
Have you tried finding a Pain Management doctor? Things really seem to change for many people on this board when they finally find a supportive pain management doctor. A good pain management doctor (in my opinion) will try multiple things to try to help you w/ your pain issues - be it medications, trigger point injections, surgery, physical therapy, whatever. In addition, you seem to have maybe more than one pain diagnosis going on. While I think a diagnosis is important and something that you work towards figuring out.....the fact remains that you are in pain, regardless of what the diagnosis is. And that pain deserves to be treated!!
I'm sorry that you don't have a support system in your husband. My husband knows of all of my issues and such....and doesn't really make "negative" comments, per se. But he doesn't understand much of it....so I really have to find my support system in a different place. This board is a big part of my support, as well as friends and a couple other family members. Actually, my husband was more of my advocate in the beginning... But, after five years or more or this stuff, it's not the same like it used to be.
Anyway, let us know more of what they looked for, etc. and if you've looked for a PM doc. And anything else you want to share!! I really hope you find good support here
Pain Issues: Neck/back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands, arms, feet; I also have POTS/dysautonomia; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea; etc etc
Meds: MS Contin (480mg daily); Dilaudid (8mg/3x day); Actiq (1200 mcgs/1x per day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...
Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation