At times I feel that if you and I knew each other better we would be solemates in medical misfortunes and maladies. I am not playing down your misery at all. I understand...I truly understand. I have a pain pump and an SCS for chronic pain related to a rare degenerative brain disease. This disease has affects both nerves and muscles, so like you I also have respitory diseases and require Oxygen. Somewhere down the line I was also blessed with colgenous colitis. I am fortunate it is not full blown chrons like you suffer with, but I more than understand digestive difficulties. At times I am the queen of the "Realm of L.S." definition: Loose Stools to say it to dignity. I certainly spend enough time on my "throne" to prove it. It seams like no orafice has been untouched. Chronic dry mouth from med.ications and a shoebox full of different of respitory inhalors. Skin crude exaserbated by stress --treatments always include to goopest and greasiest ointments known to man. Prematurue osearthritis with added steriods., etc, etc, etc, Each new med adds about
20 lbs. Suzie, when ever I read that tag line, that what affects us most only makes us stronger. Or better get God would not give you what you could not handle. I might be handling it, but I have lost alot of so called friends and familu along th way. Like you I also ended up injuring my ankle. The ortho keep saying it was a sprain, but since we can't get MRI's did not go any further. I jerked around with him and him lag and ankle braces - along with endless PT. after 6 month I got a second opinion and a CAT scan. My dam* ankle had been broken and untreated for 6 months. The constant twisting in PT pull the joint so far apart it will never heal properly. So Suzie, whenever you feel like you can't take any more - call me because I understand where you are coming from. Remember, nobody said life was going to be fair. So of us are Prom Queens ours of us have our own special thrones.
I feel at times that you are a cybersole mate in medical misfortunes. I am not making fun of your misfortunes in as way - we just realize what it like to say those dreaded words "what else could possibly happen" and just when we finish the sentence we sometimes find out!
God bless. if you do not laugh you will never make it through this life same or semi-sane.
Take care and you are in my prayers tonight.
Co-Forum Moderator for Chronic Pain
Rare neurodegenerative /movement disorder called “Multiple System Atrophy”. Mobility issues,, neuropathic pain, spasticity, central apnea, collagenous colitis, joint and body pain, swallowing and respitory involvement, Implants: intrathecal pump & neurostimulator. Extra features: O2 & wheelchair