Hey Susie and Char!!!
I will post this on the fibro forum as well. It's so good to post and to see that someone remembers me after so long lol
Well to answer the ??? as what has happened with me,no, I haven't had the brain surgery as Medicaid won't pay for it. I still desperately need it as the vessel in my head is more than 80% blocked and the neurosurgeon has said its not if but when its going to blow and with it cause major damage or death. He has been pleading as well has my reg family doc,Dr. Roes with Medicaid to pay but Medicaid has said this procedure isn't covered and won't at anytime be covered.
I feel like I have a ticking time bomb in me. I try to keep calm as this raises my blood pressure and is very dangerous but it's hard not to get upset. I am having horrible fibro pain and not sure if it's a flare or just how it is now. I am having pain in my arms and ankles and wrists daily. It hurts so much to walk or hold even anything in my hands. Jay has to carry my purse as well as everything else. My nausea is getting badder as well as becoming ultra sensitive to most things. I can't even enjoy eating anymore as everything tastes funny to me and I have trouble with swallowing and gagging.
I haven't been posting but a still do read almost every post in the fibro and pain forums and I so terribly miss talking to you all and need the support. Just know that I am still here to laugh with you and cry with you.
I had to stop taking ambien for sleep as it was making sleep walk!!! I was falling and getting hurt almost nightly and then duhhhhhhhhhhhh I figured it out after I fell and broke some ribs and bruised my kidney!!! So now even with melatonin I don't sleep much.
Jay is not working since his ^%$*** boss decided to fire him or rather "let" him go. It was without warning and without good reason and he just now is getting unemployment after waiting on that for 2 months. We were down to our last 47 bucks and were living off food stamps, so we, like so many ppl are cutting corners and driving each other crazy with him being home.
Jayson has been for the most part really great. He is doing a lot of stuff around the house to take care of me. I feel so sad that I'm not able to do my part now, before I used to over do it and now I don't have the energy to even the basic things. Hell,its hard to just take a bath, even that wipes me out. I do have a referral supposedly to a pain clinic. I haven't talked to them yet,and they are the same clinic that told me before that they didn't take Medicaid so we will see. If it's true then maybe I can finally get some good pain relief as this is just getting crazy how undermediciated I am specially now. So say a little prayer for me on the head thing. I sure not ready to die.
Well, this post had takin forever to write. Take care everyone and God Bless.....
Mom of one gramma to 4 lover to One
Had another stroke 2/09 and it took my speach for the most part and dont know when it will coming back. Caused serious stroke symptoms on right side of body.
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain,nerve damage due to botched bladder surgery,torn hip joint,hypoglycymic
Norco(double strength vicodin) 80 to 100 mg @ day
Ms Contin(morphine) 45 mg @ day,Lyrica 600mg @ day