I think if you follow along with us for awhile you're going to see that many of us struggling with answering some of the same questions you ask. You're right that it helps immensely to have others to talk with who not only experience CP, but have been through a lot of procedures, medications, etc. It is important to remember, though, we're not doctors, and everyone's reaction is different so you still need to take things - especially responses to medication - as opinion and not fact.
Compared to many forums, this is great because of how it's moderated, and the forum rules kind of keep us coloring in the lines, so to speak! LOL But it is still a forum.
I know I never had low back pain until I took a bad fall back in 2004 (Nov. 5, 2004 - funny a date can change our lives). I tore the ACL in my left knee and within a couple of months started having back pain, pain down my right leg, and slowly developed numbness and tingling in both feet. I still have those symptoms after lots of Physical Therapy (PT), numerous injections - which often contain steroids with the hope of calming the pain for at least a few months, and finally, a double lumbar fusion. I had a lot of PT after my surgery, but still, the symptoms never improved. Sometimes nerves that are compressed or injured for too long don't heal. What I have learned is the spine and nerves are complex and challenging parts of the body!
I did a lot of studying on websites usually associated with major medical centers like the Cleveland Clinic, etc. to learn a lot about anatomy - although I am still a novice. I think the website Cleveland Clinic contributes to was www.spineuniverse.com. I'm not sure if it's ok to put that in the post, but I don't think they have a forum there that competes with HW and I have no monetary connection with them (check the forum rules to know what I'm talking about!). But they were a very user friendly site for a lay person, giving a lot of diagrams of the spine, and so I was able to understand what "facet joints" look like, etc. They're a part of the spinal structure. Injections can be given into a variety of places in the spine; the facet joints are one part. I had facet joint injections before my surgery for diagnostic purposes - which means they givev you some medication and if it stops the pain then they've managed to find the right site. Doctors thought maybe because there was so much arthritis in the facet joints that they could be causing the problem, but the injections didn't help, so they weren't.
I don't know much about the complications with adult scoliosis but Dani seems to know more, and again, I'd suggest you go to the websites of some of the major medical centers (not sure what they might be in Australia, but you can still get info. from websites in the states) and read, read, read! I also went to a site www.medscape.com which is affiliated with a site doctors use to get their journal information, www.medline.com. Medscape is free, and has more articles oriented for us lay folk, but you can access some of the journal articles (same things the doctors read) searching Medline. Sometimes you have to be a member to get certain info. from Medline, and there's a fee for that. I can't tell you how many articles I printed out on lumbar fusion surgery before I had mine! But there were sections that were over my head - but it at least gave me some info, and some things to ask my doctor. It can also give you an idea if you search the site about treatments for adult scoliosis. I'm sure each case would be different.
Ok, I've gone on long enough. Hope some of this helps! And don't forget to search the old threads of Healing Well. There's a lot of good information in them, but again much of it is our experiences and opinions.
PAlady, hope all is well.
Yes indeed i have been exploring this site and cannot stop reading when i am not in to much pain to sit at the computer, the experiences and peoples stories, info etc... are incredible , there is alot of inspiration , support and caring people here which is just wonderful. Its amazing how positive you all are, and this has been a huge benifit sharing stories with you all even in this short period of time. Its also great to hear what people are using for PM , other than meds, compress heat packs etc... it all helps and i need to experiement with some of the info i have read in the forum, as i said.. it all helps.
Thankyou for your info in relation to rescources/'other websites, your time writing to me, is very much appreciated.
I will check them out, sounds like you have really educated yourself, there has been some very valuable info on some of the old threads.
I am so sorry to hear what you have been through, it must be very dissapointing that your symptoms never really improved after surgery,at least the injections and PT can give some relief, I hope this PM is adequete for you, i have spoken with someone on another forum and they told me that the problem with most pain managment is that its short lived, doesnt provide long enough relief, but that is there experience.
They use the steroid injections here for mostly sports related injuries, or tendernitice etc... i have not explored this option as yet , but will do so with the specialist. Does or has these injections caused weight gain to you? if you dont mind me asking. i need to keep my weight down to eleviate pressure of my back and internal organs heart, ribs etc..., i managed to lose 30 kilos, but personally i feel that this has not really eliviated my pain, but i do feel much healthier and comfortable , if that makes sense.
Your experiences and opinions have been just wonderful, i do hope you are in good spirits.
Thankyou once again, keep in touch
Cheers from the land down under!