Hi Bob... I've had a hard few days so I haven't been on the boards...I see that you posted before about your "intrathecal failure"...I haven't had a chance to go through all that thread yet. However, I just want to write and encourage you on your journey towards getting a pain pump.
I really need to get a pain pump as well. I have gone through about every pain medication there is...and my tolerance is ridiculously high towards all the oral meds, not to mention the side effects... Anyway, I had the trial done in September, 2008. The trial itself went very well. However, towards the end of it - I got a massive headache and severe neck pain. I ended up having chemical meningitis and spent an additional three weeks in the hospital. After I recovered from that - I spent the next couple of months being extremely disappointed. I had such high hopes that the pump would work, etc. Since then, I've let go of that disappointment and just think, that for whatever reason, it wasn't my time to get the pain pump. But I still hold out hope that I will be able to get the courage to do it again. I don't even have to do the trial again; when I decide to do it - I'll be going in for the implantation.
Anyway, I share this story with you...not to frighten you! - but to just say that I admire you going forward and deciding to try again for the pump. Again, I haven't read yet "what" you went through originally.....but I'm glad you have new hope and are trying again. I think it is also great that you are doing your homework and looking for the "right" doctor. As you know, it is so important - especially for a pain pump patient - to have a good doctor that is up-to-date on how the pumps work and w/ what medications, etc.
What medication did you try in your pump? I will be going w/ Dilaudid as morphine doesn't work as well for me.
Well, I have to run...but I'll read your other thread soon; I know there will be others along to encourage you as well... Good luck to you!
Pain Issues: Neck/back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands, arms, feet; I also have POTS/dysautonomia; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea; etc etc
Meds: MS Contin (480mg daily); Dilaudid (8mg/3x day); Actiq (1200 mcgs/1x per day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...
Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation