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Veteran Member

Date Joined Mar 2009
Total Posts : 1158
   Posted 12/2/2009 11:10 AM (GMT -6)   
I just got back from my two week vacation to florida.  Some of you might remember during last summer my husband cancelled out vacation for me.  He didn't want me in the florida heat.
Then everyone on here helped me with idea for traveling with Chronic Pain.  Alot of your idea were wonderful.  I had stock piled pain meds which was the best idea!  I was still limited and the pain didnt hit with a vengence until yesterday the day we got back.
Now the family all know about my termial illness and they were treating me like I was already dead!  Man o man that was hard trying to explain that everything was really ok.  I must of sounded so flippent!!! yeah
For the next vacation I will take a cane though.  I'm still on the fence about a cane.
Kidney Diseases and Disorders
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........

Veteran Member

Date Joined Dec 2007
Total Posts : 1235
   Posted 12/2/2009 2:02 PM (GMT -6)   
Glad that you were able to go on vacation, but the treatment from family must've been a bit hard to deal with. I can't imagine how difficult it was for your family to hear about your medical problems , so I think that must be part of why they reacted as they did.
As for using a cane, I have had to make that decision, albeit , it was a while ago and I still have my moments when I get stubborn and refuse, but it really does make a difference when you are trying to walk. It gives you something to hold onto....
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
Avascular necrosis of left wrist- maybe hips too

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 12/2/2009 3:54 PM (GMT -6)   
I've wondered where you've been. Guess i forgot you went on vacation. I forget a lot of things these days! LOL

Here's an idea - take the cane next time and bat the family members over the head who are treating you like you're already dead. That'll show them you're not! LOL

Sorry, I couldn't resist!

Hugs - and glad to have you back, but go rest that tired body and mind!


Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 12/2/2009 11:17 PM (GMT -6)   
Welcome home and hope your pain eases up some...try a nice long soak in a hot bath...
There are plenty of pretty canes out there I have a black cane with a pearl handle from
fashionable canes, it helps keep me steady, they have some very nice choices of canes
I saw someone with a nice wooden cane, but those are kinda pricey...
Lots of soft healing hugz and hope your getting lower pain levels soon...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 12/3/2009 9:11 AM (GMT -6)   
This is the place Chart is talking about.  I have gotten a couple of canes from this place.  They custom cut them to your size.  You will want a session with a PT so they can show you the best fit, how to manage stairs, how to walk properly with it, which hand is best for you to hold it in etc.  I have no connection with this place.  I like it because it gives you lots of ideas as to how many different styles are really out there.  Once you have a cane you like, it makes it less icky.  I love all my canes. 
Gretchen  ~  diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

Veteran Member

Date Joined Mar 2009
Total Posts : 1158
   Posted 12/3/2009 10:33 AM (GMT -6)   
PAlady if I had a cane a few times on the trip the teenagers would of had concussions..yeah   Its not like they didn't have a tv, 2 laptops and a sony xbox360 to keep them busy they still had to fight over the personal vents in the SUV the WHOLE time.
I would find it easier on the pain if I broke down and bought the dang cane.  But my co-workers would ask so many questions.  I'm such a private person.  I don't want anyone to think I can't do my job.  I walk alot at work about 20 miles a day.  No joke!!  Just to get to my desk is 1/4 mile.
I have only told two people at work about my condition.  One of them hovers over me like hes a mother hen.  I tell him to go away all the timesmilewinkgrin   Hes a great guy but I even work circles around him.yeah
Chart I remember you telling me about fashioncanes I went to the website lasttime we talked about this.  I think when I get home tonight I will sit down and bit the bullet and get one.
Thanks everyone
Kidney Diseases and Disorders
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........

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