I too would like to welcome you to Healing Well. I am so very sorry to read what has been going on with you. I think by now you can tell this is an awesome group of people on this forum. I do not believe you will find a forum out there that can compare to this group. I have been hanging out out here for a few years in different forums, I am lucky enough to have enough wrong I can jump around to different rooms, lol. But all kidding aside, when I first came to Healing Well, my world had been completely turned upside down, inside out and I did not know what in the hail I was going to do. I no clue how to cope, how to accept what was going on in my life. This forum became my safety net.
One of the first things that sort of jumped out at me was what Mrs. picked up on and spoke of, a conditions called RSD. I do hope you will google this condition and find a reputable website and read up on it. See if any of your symptomns fit or not. I truly hope I am way off base in my thoughts, I have seen what this condition will do to a person first hand.
I have had 5 knee surgeries and understand the pain from that stand point. I lived with knee pain for many, many years. My last two surgeries were done 3 weeks apart and that was one of the stupidest stunts I believe I have ever pulled. I fell and twisted a freshly operated tear of the ACL and spent one year in a Don Joy brace, a week in the hospital trying to get the pain under control. It took my knees 18 months to heal due to medications I was on to manage my crohns disease. Because the meds were relatively new no one knew if it would affect the healing process, well it did. I was ready to shoot me, the drs and anyone else that crossed my path.
I have a couple of things I would like to throw out that I would consider doing if I were in your shoes. The first thing I would do is get a second opinion with a ortho that is board certified preferably in sport medicine. I would take my op records and go see what he/she thinks. Then, I would have my ortho or even my PCP ref me to a PM dr. Most PM drs want a ref from another dr so be sure this is done. I would call one of the local hospitals in my area and I would get some names of drs from their referral line for a PM dr. Keep in mind sometimes we have to go to a few of them before we find the right fit. Not all PM drs are created equal just like our other drs.. Sometimes we have to kiss a few toads before we find our prince/princess. There are two types of PM drs out there. One does nothing but prcodures and injections and will not write a script for pain meds, you don't want to go there. Then, there is the other kind that will write scripts and does the procedures too. Before ever seeing one call and just ask up front if he does procedures only or if he does procedures and gives scripts for meds. Pain mgt drs have more knowledge under their belt to handle someone with CP over say a PCP or an ortho. Sometimes it takes a combination of meds to get relief, different kinds of modalities, its a mixed bag, but you want someone with experience pulling things out of that bag.
Another thing, is I would talk to my PCP about getting put on something for depression and being referred to a pyschologist that also deals with CP patients or someone with experience with patients that have medical issues in their life. Personally, I prefer a psychologist over a psychiastrist, I wouldn't give two cents for one of those guys, lol. but again that is my opinion only. lol. I was referred to one and let me tell you, she was a lifesaver for me. By the time I got to her I was a complete mess and truly had no idea how to cope on a daily basis, deal with any kind of an issue, talk about a fish out of water, let me tell you, I was there. I wasn't crazy or anything like that, I just had come completely undone with my life and I did not know how to put the puzzle back together. It was really hard taking that step because I am one of those people that has to be in control of her life and I was totally out of control.
Depression and CP for some reason go hand in hand. Sometimes we have to try several types of medications to find the one that works the best for us. It is like any other medication we take, it is not a one size fits all. For me being on an antidepressant helps me smooth out the rough edges. Makes my life a little less hectic and I am not so scrambled inside. I think if you have read many posts here you will see that people that have CP are the strongest people walking this earth. Not just anyone could deal with the issues we do on a daily. It is definetly not for the weak.
Our lives get so turned upside down, we lose our friends in many instances because we are not able to get out and run with them, our finances go down the toilet, our familes don't understand what is wrong with us because after all we appear to look ok, we spend a lot ot time seeing drs and sometimes they don't know what to do with us, we get angry with everyone including ourselves, it just seems to be never ending. Many times we think there is no light at the end of tunnel, but there is, its just real dim some days. The important thing is to never give up or give in, keep fighting and keep looking for answers.
I hope you can get some answers and help soon. Hang in there, it will get better.
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.