I've been so busy this last week with school productions and house jobs (we won't be in for Christmas, our new house is taking forever to finish, just ran out of time)
My body of course decided to continue this flare despite all the meds my rheumy is throwing at me. I'm trying so hard to not let it get to me. I had my first infusion of infixamab last Friday which went well but didn't do much for my pain yet. Next one is next Tuesday, so cross your fingers I get some sort of response.
Saw my rheumy again yesterday and she tells me my wrists now have tenosynovitis. Seemingly it is common in people with RA to swell along the tendon sheaths. Has anyone any experience of it? If the inflixamab doesn't work, she can get these injected under ultrasound but it sounds as if fusion is the long term answer. It sounds so drastic and not something as an artist I want to contemplate...
She removed the fluid from my knees and injected them both with cortisone, I'm still a bit stiff but wonderfully pain free today in my knees. My feet are getting quite swollen too but the prednisone I'm taking orally seems to have taken the edge off the pain there. So slowly chipping away at the pain just my wrists and elbows that swallow me up with the bone gnawing pain now. I'm keeping positive that the second infusion does its thing.
I hope everyone is ok. Skeye did you make a decision on your implant? I keep wondering about you.
I'm managing to sleep about 3 -4 hours at night on this stupid prednisone, it really gets my brain whirling. Anybody got any helpful suggestions?
Sorry I haven't been posting much lately, kids are on holiday now so less time to myself. Best wishes to all , I miss you guys, golitho