New here and frustrated

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New Member

Date Joined Dec 2009
Total Posts : 3
   Posted 12/18/2009 6:38 AM (GMT -6)   
Hi everyone. I just joined this group and hope someone has some insight for me. Its a long story, but I was injured in a fall in 1991 ( I,m a retired nurse.) I wont go into details about the fall, just to say it took me years to get a diagnosis and it shouldn,t have. After wrangling with Workman,s Comp, every GP in town, etc, I was sent to a specilist who found a torn Meniscus and a Baker,s Cyst behind my knee. I had surgery for both, but continued to have excruciating  pain behind my  left  knee, extending into my calf and foot. I eventually had to quit work because of it. I could no longer tolerate eight to ten hours on my feet, not to mention bending and stooping with my med carts and treatment carts. It just became too much for me. What really became frustrating was finding a doctor who could diagnose  why I was having such intense pains and exactly where they were coming from and finding a medicatuion that helped. I,ve taken them all and I,m sure alot of you know what I mean. They started me out on OTC meds, then Arthritis meds, then stronger RX meds. After so long a time they decide its all in your head and try to give you antidepressants. It wasn,t until about nine years later that I finally got a doctor to give me Lortab. It was the only thing and I do mean the only thing that touched the pain I was having. Now almost eighteen years later and I,m still on Lortab, even though they aren,t as effective as they use to be. I was put on Neurontin about a month ago and thought it was going to help me, and it did for about two days. Then nothing. I have a cabinet full of old meds that were prescribed, but never worked. So here I am. Older, but wiser and still in pain. I have to tell you guys I,m extremely sensitive to narcotic pain meds. What some of you take   would lay me up in bed for weeks. I,m in a catch 22. Too much meds and I,m in bed all day unable to do nothing but sleep. Too little and I,m in agony and barely able to function. I,ve basically just learned to live with it. shakehead

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 12/18/2009 8:36 AM (GMT -6)   
I have also, had sensitivities to pain medicines, I've tried so many over the last year, it's not worth trying anything new at this point...Sure would be nice if there was a pain medicine out there that didn't put you to sleep....wanted to say sorry about your fall.
nice to meet you but sure wish it was under better circumstances other than chronic'll find a lot of nice caring people here, and I wish I could offer you better advise...
Lots of soft caring healing hugz coming your ways...
keep us posted as to how your doing...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


New Member

Date Joined Dec 2009
Total Posts : 3
   Posted 12/18/2009 9:04 AM (GMT -6)   
Thank you for your reply. I meant to add in my post that years later I had an Orthropedic specilist diagnose my leg pain as being caused by a herniated disk with bilateral sciatic involvement. I had had numerous Cat scans, MRI,s, etc, but all they ever tested was my legs, not my back. When I went to this new doc he ordered an MRI on my back and legs. Thats how he found it. I refused to have surgery, as I knew, being a nurse, that surgery either didn,t help or made things worse. Thats something I do not need.

Regular Member

Date Joined Dec 2009
Total Posts : 79
   Posted 12/18/2009 9:25 PM (GMT -6)   

I'm so sorry to hear that you've gone through all of this. I was also injured by a fall, though it was my shoulder. I wish I could offer you some sage advice, but all I can say is that you've come to the right place, and I hope having us to talk to helps you!

Pain Issue: Sub-scapular bursitis, scapular dyskinesia, nerve damage down left arm, shoulder and neck
Treatment: PT, Tens Unit, Oxycodone, Diazepan, Hydrocodone-APAP, Tramadol, Voltaren/Duac gel

Also random hearing loss in both ears at age 18ish, not sure exactly when it happened or why. Got amazing Oticon hearing aids at 20, they've worked wonders! Keep hoping that my doctors can connect my ears to my shoulder and fix them both all at once!! A girl can dream, right?

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 12/19/2009 12:18 AM (GMT -6)   

Welcome to Healing Well Chronic Pain Forum! Your one of many of us nurse here on the forum! Seems there are quite a few of us here! I am sorry about all your pain and what you have had to go through, I will tell you, that you are not alone, at least not any more, as you have came to a place were there are some of the most caring and compassionate people that you will ever find anywhere, and they all share with you similar stories and experiences, and above all PAIN. We don't give sympathy here we give empathy! We know what your going through, and we give you our ears so we will listen and we give you our support and we share in your pain! So rant, rave and vent all you want all your frustrations with your pain, we are here for you!

I will tell you I understand your apprehension to having surgery, but I just had my second disk fusion at C5-6 this time. My first was in 85 at C6-7, as soon as I woke up after the surgery my arm pain was completely gone! The surgery did not help my neck pain, but my left arm pain was completely resolved! Now if they would only fix the herniated disk at T12 and the bone spurs at T8 and T3 I might be in allot better shape! But nobody wants to touch the Thorasic area!! I am not sure I agree with you about the surgery, but that is a decision the each of us has to make for our selves. And I do understand why you feel the way you do! There are never any guarantees with this type of back surgery! It really is a toss of the dice or so it seems!

Anyway I am glad you found us, again Welcome to the forum and our family!

White Beard

Forum Moderator

Date Joined Feb 2003
Total Posts : 16779
   Posted 12/19/2009 1:33 AM (GMT -6)   

Hi Joy, I too would like to welcome you to Healing Well. I am so glad you found us but always hate to see a new person come along that is afflicted with CP. I do hope you will hang out with us here at the forum. We have a great group of people on this forum and one thing we all have in common is CP. That and knowing how CP can take over your life and nearly destroy you and your life in the process if not careful. It is sure one tough one to battle with every day. I have gone the surgery route with both of my knees, had 4 on the keft and one on the right. I have had meniscus tears with both knees and do know what a problem they can be. My son had a situation a little similiar to yours. He injured his knee working out, lifted too much weight and tore the menicus. He hadsurgery and the knee never got any better. Finally, he got a second opinion and after another MRI had knee surgery. He too had a bakers cyst and a tear of the meniscus. The 2nd surgeon said he could not find any evidence that the 1st surgeon repaired the meniscus. It was really a mess in there by the time he got to the 2nd dr. 

What has your dr offered up as to why you are having such a time with your knee?Does he think all of it stems from the delay of no treatment for so long? Unless, I over looked it, are you by chance seeing a pain mgt dr? If not have you thought about perhaps getting a consult with one to see what is available for you that may provide you some relief? I  understand what you are saying about medications. But that is also where a PM dr may be of some great help to you.  

Again, just wanted to pop in here and say welcome aboard. Take care and please let us hear from you.


crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Pete trips again!
Veteran Member

Date Joined Nov 2006
Total Posts : 1899
   Posted 12/19/2009 8:42 AM (GMT -6)   
Welcome Joy!!!
Sorry you are here in this place no one really wants to be but as the other stated> It's the very best place for folks like us to share w/ each other our daily struggles w/ CP! Knees can be a brutal source of pain as you know. It's a dadgum shame that you haven't found the propper treatment and care you need and deserve!!!

Backs on the otherhand can really put you in a crippled state! From being around the block w/ both a time or two and listening to all my friends here in the forum, when it comes to nerve pain, nothing surprises me!!! It's not at all uncommon to have nerve problems in your back or neck that rear their ugly heads somewhere else in your body!

I have a bone on bone situation in my left knee after a few surgeries removed most of my cartalage almost 20 years ago. Now I'm just waiting for the day when it's time for a new one. The same deal w/ my left hip only I think it will give out first. Both burn and acke badly but nothing like the pain you have described!!!

I am a large man, hovering between 250 & 270 but as recently as last summer was over 300lbs. I was formally 6'3" but after a cervical fusion and multible ruptured and torn disks in my lumbar and cervical spine I was mesured last month and am now 6'-2" !!! The reason I mention this is because I can't handle large doses of narcotics either even beeing large! I hate getting that tired~ dosy~spacy feeling and if I take all I'm prescribed> methadone #10mgs, oxi#15mgs and muscle relaxers I'm like a pile of jello! So I only take enough to ease the pain w/ the help of massive doses of hot black coffee / espresso blend I brew fresh all day long to keep me going.

OMG, enough about me!!! So sorry to go off w/ the "it's all about me thing"!!!
I'm sure you will find lots of helpful advice here as well as lots of new friends!!! Remember that we are NOT doctors, just people like you who between us have a vast amount of experiance w/ pain!!!
So again Welcome and please stick around and feel free to jump in anytime w/ your own post or repkly to anyone else you wish!!!!
Your new HWCP friend,

Veteran Member

Date Joined Nov 2008
Total Posts : 1037
   Posted 12/19/2009 3:05 PM (GMT -6)   
Oh....this is the story of our lives.  Most of us anyway.  So many of us have been through the entire list of pain meds...including antidepressants, nerve pain meds, OTC meds, creams, name it.  And some of us are really sensitive to certain meds...My mom for example can take one Lortab 5 mg. and have nightmares for a week and it does nothing for pain...and she will only take a Tylenol if you push it.  Me, now I can take 2 Oxycodone 30 mg. and have it only help for a couple of hours at the most...and that's with my Methadone 120 mg. a day.  But Morphine does NOTHING.... Odd, huh?
I have been dealing with lower back issues since I was about 20.  I'm 42 now!!  I have had 2 surgeries: the first was a Lamenectomy back in 1999, the second one was Spinal Fusion at L4-S1 back in 2004...thank God they didn't use hardware but only my own bone material they harvested during surgery...But even those didn't work well.  I have DDD, Spinal Stenosis, OA in rt knee, bulging discs, bone spurs....too much to write and some things I don't even know.
It sucks to hear people say "Live with it"!  I say...You live with it and see how you like it!!  All you can do is the best you can...that sounds lame, but what else can we do?  I have no other options left since I did the Fusion..I wish I had waited and hadn't put all my faith into it.. Permanent nerve damage made it not work.
Please try to live every day to the fullest and don't let the CP be who you are...I have made that mistake for many years and I have wasted years with it defining who I am..

I have been a spectator for so long..Now it's time to participate.......
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   


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