I just joined today when i saw a members' post about
a cranial implant. I'm a 55 year old female. about
nine years ago I got what we thought was a cold so I was treated for a cold, then an ear infection, then allergies, etc etc etc. It turned out to be none of the above but rather shingles in the right side of my head which left me with nerve damage and chronic severe pain in my face and head. After 13 doctors and as many blocks, cryoprobes,a supraorbital nerve stimulator and trial opcipitol nerve stim trial implant which did not help and I refused to have the permanant implanted I have found no relief.I had previously found relief on Actiq but when I refused the 2nd stim implant my doc refused to prescribe it anylonger and would only order norco. After 8 very long and extremly painful months he finally added 10 mgs of opana but cut the norco to 4 x's a day. I have yet to find any doctor, including Mayo, who will see me for another opinion . As soon as they find I have the stimulator they will not see me due to the risks. Currently I take 10 mg Opana, Norco 4xs for breakthrough, 50mgs topomax, 75mgs lyrica and thats just the pain meds. I am hoping at the next visit he will at least agree to increase the opana to 20 mgs to see if it will help. At this point I am losing faith and any hope . Its been 9 years, I've had to quit work go on disability, run through retirement fund to pay for the Actiq and can't seem to express to the doc exactly how much pain I am really in. Any help anyone can offer ,or any thoughts on drug "cocktails" I may suggest would be appreciated. I don't know what we haven't tried but at this point am willing to try anything.