And welcome to the family. We all may have suggestions and even with that we might not be able to totally solve your problems but we sure will give our best...I can promise you that. One of our moderators, Stella Marie, has been dealing with a brain disorder and has lots of knowledge and experience that I know she'll share with you. If she hasn't come by soon I'll email and ask her to offer some ideas. Again, she's not a doctor but her thoughts and ideas may help you ask the right questions or get to someone who will treat your pain better.
I know you've been to a lot of doctors and to Mayo but have you been to any of the teaching/university hospitals? They are on the cutting edge of technology and it might be just what you need. There are these types of hospitals and doctors in every state. In the CP 101 thread there is a list of the majority of them and you can find one nearest you. It may be a long drive but I would think it's well worth the trip. Here's the link to find one nearest you so you don't have to go searching around for it. ;-) en.wikipedia.org/wiki/List_of_university_hospitals
I do hope you get some help and relief soon! Your family here is supporting you in any way we can. It doesn't matter if you have been a member 1 day or 10 years, everyone is important and we truly care about
each other. Just let us know how you're doing.
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers
(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.