I agree with what has been said: sounds like it is time for a new doctor. I as I just wrote on Donna's thread, it often takes going through many bad doctors before you find that one good one. I know exactly how you feel, feeling as if you are at the end of your rope. I've been through essentially every medication and injection used for pain with no relief. I've even been through a whole bunch of alternative medicine like homeopathy, acupuncture, and osteopathic manipulation, again with no luck. All of my doctors are scratching their heads. They, as well as several outside consults, all agree that there isn't anything left to try except this peripheral nerve stimulator that my insurance just denied. Other than that all that is left is to remove or kill the eye & there is a fairly strong possibility that even that won't help the pain. So for now this stimulator (assuming the insurance accepts one of my appeals) is my "last resort." Yes, medicine is advancing every day, and doubtless new treatments will come along in my lifetime & perhaps then I will find relief. But that could be 10, 20 years from now, or maybe even more. It is really scary to think about
the prospect of living each day in excruciating pain with no relief whatsoever for years!
I'd suggest you get as many opinions as possible. Go see a PM at a big well-known teaching hospital for a consult. Speak with other Lyme doctors. Just don't give up! Even though I mentioned that I "only" have "one" option left, I haven't given up fighting. I'm constantly searching for new doctors or therapies which might be able to help me.
Are you or have you considered taking anti-depressants? I know you mentioned that you see a psychologist, and that is great. CP related depression effects so many of us (me included). The depression tends to make not only our outlook worse, but our pain worse as well. And in turn, our pain makes our depression worse. If you can't break the pain cycle, maybe you can at least break or prevent the depression. It's not always the easiest thing to do (I'm unfortunately just as resistant to anti-depressants as I am pain medications -- I'm currently taking 3 antidepressants and they make only a slight difference). But if you find a great psychiatrist who is knowledgeable about
CP, they can do wonders for some.
One other thing: have you tried any alternative therapies? They don't work for everyone, but the make all the difference for others. It is amazing how differently our bodies function. Alternative therapies can be good stand-alone therapies for some, or supplemental therapies for others. You might want to look into things like homeopathy (I'd suggest seeing an MD-homeopath over a non-doctor homeopath), naturopathy, acupuncture, osteopathy/cranial-sacral therapy, chinese herbology, structured mediation. I'm a big believer in alternative medicines (although they didn't help me much. lucky me. I think I have the most stubborn, resistant body in the world). I have seen them do wonders for several people. These treatments can be somewhat expensive, since many don't take insurance, but they are definitely worth trying if you haven't already. MD-homeopaths, especially are very Lyme-literate. I think you'll find that many of these alternative practitioners (at least the MD-homeopaths, ND's, and OD's) are much more Lyme-literate than most physicians. It might be interesting just to have a consultation with one of these guys & kind of pick their brain.
I know that this isn't exactly the same, and I don't want you to feel like I am pushing you into anything, but I just want to share a story with you in the hopes that it might give you some hope or at least brighten your mood a little.
Several years ago, one of my dogs became very sick with Lyme disease. It is unfortunately very prevalent here (I live in the state where it was first discovered). It manifested itself mostly in her eyes. Over the course of several months she saw several regular vets as well as 2 veterinary ophthalmologists & was essentially told by every one that she was going to go blind & there was nothing we could do. Traditional treatments for Lyme did not help. It then spread into one of her hock joints. She's a golden retriever, and her hock was about
the size of a baseball++. She could barely walk on the leg & was in so much pain. Well long story short, we took her to a homeopathic vet & after working with this vet for several months, she went into complete regression. She still has permanent damage to her eyes and her hock & has her occasional flares, but for the most part we've been able to stop the progression of the disease & even reverse some of the damage. Conventional medicine failed her. Without the homeopathy, she could have lost both her eye sight and her leg, but now she is a happy, "healthy," 5 yr old dog!
Forgive me if any of what I said was mentioned before. I really can't read through all the posts anymore with the state of my eyes.
Hang in there girl! You're tough! You're going to make it through this!
Post Edited (skeye) : 1/6/2010 10:12:21 PM (GMT-7)