Dani please read

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Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 1/7/2010 4:31 AM (GMT -6)   
I was just checking out the osteoarthritis forum and there is a new member, Mokie, that states that they had surgery in 1974 for scoliosis using harrington rods.  Maybe you can hook up with this person.  Good Luck!
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 1/7/2010 10:18 AM (GMT -6)   
   Dear Jag,
     Thank you very much. I have been able to learn quite about so far and feel comfortable in the knowladge I have attained thus far. Though I do wish I could get ateast some sort of idea as to the cost. a minimum and maximum. I dont think that would be possible thou. Now, all I need to do is read more into the risks and benefits of some of the "possible" medication treatments that were mentioned to me if the news isnt good and boneloss has progressed. It is my understanding that they wanted to try all other methods first due to side effects and being "too young". So, that will be next and then hopefully I am prepared for any news, good or bad.
       Im afraid I am far too shy to go to another forum room.  shakehead I dont mind talking about how awfull things are here with friends, but I am afraid new people mean new questions and I am just dont know if I am prepared for that right now. shakehead  I will try to take a deep breath and go over and introduce myself thou. Thank you very much. I do hope you have a nice day today.



Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 1/7/2010 1:47 PM (GMT -6)   
Hi Dani, In being a paediatric nurse I have looked after several teenagers getting a scoliosis repair. They always come out of it with flying colours. You know how resilient children are. But I have no info on the procedure done as an adult. i imagine it is done in the same fashion. Have you been to your orthopedic dr. to discuss the procedure with you and get all your questions answered.

Big hugs for you today.

Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 1/7/2010 5:11 PM (GMT -6)   
Hi Dani, when I was having my infusion there was a woman in there getting an infusion of some sort of bone cement to stop her bones degenerating any further, She said they use it in people with bone cancer to sort of harden up the dammage. But she sounds like she has something similar to you. Her eyes, hearing etc degenerating. Becaue she was a complete stranger I felt uncomfortable asking her too many questions but wondered if this bone cement stuff has been offered to you at all? She said before it she was having toes break all the time and then her spine started snapping, this was her third infusion and she'd had no more broken bones since. She looked in her thirties, had 4 young kids under 7 at home.

Probably something different entirely. I'll try and find the med name for you, it was definately an infusion over an hour and it began with an s. Can't seem to find it with googling but I am probably the world's worst googler.

I will ask next time I'm in there, Jan 25th. Find out if its any help for your poor bones, hers had lost so much density before the treatment, she was breaking bones all the time. Sounds horrendous.

I'm thinking of you, golitho

Forum Moderator

Date Joined Feb 2003
Total Posts : 16787
   Posted 1/7/2010 5:56 PM (GMT -6)   
Hi Dani,
Are your drs talking about trying to surgiccally repair the scoliosis? Does this mean your bone loss has stopped? I wouldn't think they would do surgery if you were continuing to lose bone.
I know of a couple of teen girls with severe scoliosis. Their curve was way out, from what I undestand the curve has to be out so many degrees before they will do surgery. Both girls did beautifly but, they were young and kids that age bounce right back. They both had the Harrnigton Rods implanted and for once they could stand straight. They each said it was a rough surgery but they were very glad they did it and would do it again if they ever had to. It was a big moral boost for the girls and they said they would do it again if they had to.
No telling what it would cost, the hospital can give a rough estimate, same as the surgeon & anesthesiologist. But for the incidentals there is really no way of knowing, just a guessament. Seven years ago it was around $75,000 for back surgery, I use to have to get estimates on client's cases.
Take it a day at a time. Hugs,

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Regular Member

Date Joined Oct 2009
Total Posts : 453
   Posted 1/7/2010 11:45 PM (GMT -6)   
Dani I have scoliosis too and I had back surgery but they did nothing to my scoliosis and said that it wasn't effective in adults. I don't know if it meant because I was in my 50's but I guess I was too old. I know you are younger and I don't know what age they consider too old.

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 1/8/2010 9:40 AM (GMT -6)   
    Thank you all for your replies. It means alot to me.
     I am not a cadidate for any surgicals til we have confirmation the extensive boneloss has stopped. I will know weather or not it has stopped in Feburary. I am trying to prepare myself, so I do not become frightened. On day ill tell you a kinda funny story about what I did to the doctors when I they told me my first series of bad news.... Im suprised they still talk to me, let alone treat me.
    Dear Golitho,
         Thank you very much. I apprecite your help. It helps me greatly to learn before I see them. I hate feeling scared and not able to understand.
     Dear Susie,
      Are your drs talking about trying to surgiccally repair the scoliosis?
   That is the goal. At first they thought it was mild Idopathic from childhood undiagnosed. Until my pcp provided chest xrays from previous year showing no deformity. A few month after that the bone loss was obvious and the "C" shaped curvature began progressing rapidly.
     Does this mean your bone loss has stopped?
   I will not know until feburary. I am praying for the best. But  I have lost inches from my hight.
      Dear Privey,
     Do you have idiopathic scoliosis? I do not. My "levoscoliosis" is from extensive boneloss. The progression is very rapid due to the degenerative changes that are occuring. I hear "idiopathic or age related" progress extremly slowly. I sure do miss being nearly 5ft 9in. My husband laffed I was nothing but leggs. Now Im 5ft 5in, 2years later and extremly physically exhausted :-)  I hear it is uncommon, and good thing. I wouldnt wish this on my worst enemy.
Thank you all very much for your replies. I hope you all have a nice day



Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



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