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Veteran Member

Date Joined Feb 2009
Total Posts : 999
   Posted 1/16/2010 12:07 AM (GMT -6)   
Was just thinking about you and know that you have had some computer issues so I don't see many posts from you. I know that many have enjoyed your imput and miss you. How are things going? When you can, drop a post and give an update. Hope all is well.

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 1/16/2010 12:12 AM (GMT -6)   
fatherjohn, I agree with you...and miss her as well...she is sooooo needed here on the forum. I'm not sure if she got her computer fixed or not. Maybe we will hear something soon! :)

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 1/16/2010 2:46 AM (GMT -6)   
Thanks for asking. I really miss being on the forum more often, but the site keeps crashing for me. It's odd, because it doesn't happen like this with other sites. I'm sure part of it is my computer, and I've been trying to download upgrades, but had problems. I think I may need more memory and certainly getting the computer checked is not at the top of the priority list.

I try to get on the site several times during the day, just I'm not always successful (like I don't know if the site will crash before I finish this post!). At most, I maybe get to read a couple of threads before the site crashes, and after several crashes back to back I grow a bit weary. So I hope no one thinks I'm ignoring their posts. I just do what I can!

I'm trying to collect medical records for SSD right now. Spent most of yesterday with a copy machine someone let me use. And dealing with the unbearable cold has really wiped me out. All I've wanted to do is stay in bed under the covers to keep warm, even when the heat was turned up. Fortunately we're getting a little reprieve; had a heat wave in the 30's today!

It seems to take me forever to do anything anymore. Oh - the doctor who's about 3 hours away did agree to see me, but there's no way I'm going to drive to see him during winter with an old car that doesn't have snow tires. The good news is that I called my neurosurgeon's nurse and asked if they'd write for the percocet for a couple of more months and she was fine with doing that. Fact is, I just got the Rx in the mail and have to get to WalMart to fill it this weekend. I've been stretching what I had saved up knowing this was likely going to happen, but am close to running out. So that was a relief knowing I could at least continue to get my percocet until spring comes if needed, but I'd like to get started with this doctor maybe in Feb. if we get a break in the weather (not likely in Feb!).

I hope everyone that reads this knows I wish I could be responding to more posts. I know there have been a lot of new members, and I've not even been able to read their threads!

Thanks for asking! I'd better post this before I crash!


Veteran Member

Date Joined Feb 2009
Total Posts : 999
   Posted 1/16/2010 3:35 AM (GMT -6)   
PAlady, it is great to hear from you. The cold seems to take more out of us than we realize or expect. Even though we don't deal with snow, the constant dampness and rain with lower temps here take a toll. As you collect items for you SSd at least you can do some of that from home but I can imagine that there is always something that comes up that it would be wonderful to be able to get out and find it. I am sure that it gets to be overwhelming as you look at all that needs done and even if you get all the paper work together, there is still a big question if it will be accepted or if you will have to appeal.
I have been thinking lately about how we plan and calculate what we will do as we get older but all that goes with CP was not part of that plan. We find ourselves scambling to make decisions that we did not plan on making and still don't want to make. I do hope that you get the break in the weather so you can get to the doctor and maybe a quick trip to see some kitties. At least you have an excuse for not posting much, some of us (me) it is a whole other issue. Thanks for taking the chance to post I know that others will also be glad that you did. As always, Blessings! 

Pete trips again!
Veteran Member

Date Joined Nov 2006
Total Posts : 1899
   Posted 1/16/2010 5:56 AM (GMT -6)   
Hi PA!!!
It's great to hear from you, I miss you so much too!!! Sorry to hear your dealing w/ a cold w/all the bad weather up there, yuk! So your jumping on the SSD train w/ the rest of us? I'm glad to hear it because as time passes I'm really glad I applied when I did. I'm pretty sure I'll be denied the first time but time is on my side and I'm pretty sure I'll eventually get it.

Oh I wish you could see my new Christmas present kitty! Hanna is a real little trouble maker! Her and Rose the wonderhound are becoming best friends already. This little Manx kitty is afraid of nothing!!! A real wirwind, especially at night when the rest of us are trying to sleep!
She's not real sure about the birds yet though. I was holding her up to the cage introducing them and Ponyboy pecked Hanna right on the nose!!! I'm not sure if that was a good thing or bad yet???

Sorry I haven't been around for a while, I kinda took some time off from HWCP while my brother and sons were here then throughout my eye surgery ordeal. Now I'm feeling pretty guilty for leaving my family here high & dry for too long> Bad Pete>> Bad, Bad Pete!!!
But you know me well enough by now to know I'm usually in the dog house somewhere for something, right?
Big Hugz for Yuze wit da Cold!!! Feel better and kick that computer in the hard drive or something!
Your Old Buddy,

Regular Member

Date Joined Oct 2009
Total Posts : 291
   Posted 1/16/2010 8:56 AM (GMT -6)   
Hi PA!! Do you use Internet Explorer or Mozilla?

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 1/16/2010 10:02 AM (GMT -6)   
Nice to see you PALady and sure hope it warms up in the north early this year.
Take it easy and hope things work out for you.
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 1/16/2010 12:53 PM (GMT -6)   
   Dear PA Lady,
     Good morning *hugg* It is good to hear from you. You computer must be frustraiting you to no end by now! I am sorry its picked such horrible timing to have issues. Im not very computer savvy myself and afraid I cannot offer any useful info in that area.
      Good news about your old doctor continuing your medication is great. You sure have alot on your plate right now. Hopefully if all goes well the snow will have stopped by feburary and you can meet your (hopefully) new doctor.  I am sorry its so down right cold where you are. I love winter myself, just wish it didnt hurts so badly shakehead 
      I don't know what you have planned today, but hopefully at some point you can warm up and relax. It sure was good to hear from you.



Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 1/16/2010 5:35 PM (GMT -6)   
Hi PALady...

Just a quick note to tell you that I hope your cold gets better soon... I'm dealing w/ the same kind of thing right now, too.

AND - I hope your computer issues get worked out... We've got two computers in the shop right now... and it is frustrating!

Anyway, as you can tell, you are missed very much, but just post as you can... and feel better, ok? Talk to you soon... Tina
Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; I also have Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; etc etc

Meds: MS Contin; Dilaudid; Actiq; Soma ; Neurontin; Atenolol; Midodrine; Phenergan/Zofran/Reglan; Effexor; Synthroid; Prednisone; and on the list goes...

Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 1/16/2010 7:29 PM (GMT -6)   
Awe, thanks everyone!

Like I said, I do miss posting and reading your other threads. It took me abou 5 tries to be able to post this response! So I do kind of get frustrated and give up after a dozen shut downs by HW. Not sure what it is, really. It was fine and then my phone line went out for several days and ever since then (phone line is working fine) I've had trouble, especially with HW. It was also frustrating trying to upgrade and getting messages that something went amiss in the downloading process (I had to lead my computer on all night to download the upgrades that I kind of ignore most of the year! LOL). I bounce back and forth between a couple of different browsers and have the same trouble. But it was also about the same time HW was making some server changes (remember?), so I have a feeling it's a little bit of me and little bit of HW. I crash occasionally on other sites, but nothing like what happens here.

I guess on the good news side of that is I realized how much I was avoiding (fatherjohn I keep trying to read your thread and will try to see if I can get there later tonight as I sure can relate) by spending time on HW. Now, I enjoyed being on HW, rather than balancing my checkbook (I used to keep it right to the penny, and have let it go for 6 months without going through statements, although I knew what the general balance it continues to decrease). Anyway, my checkbook is up to date now! And I'm slowly chugging along with the SSD stuff. Have other applications to finish, too, like for low income heating asistance, but they changed the income guidelines this year so I may not qualify. Everybody wants everything, too, when it comes to paperwork. Between that and finding doctors it's a full time job, and I know you all know what I mean. And it's not a job any of us want. So yes, Fatherjohn, it's sure easy to avoid those things you don't want to do. Don't want to face. Hope I'm making sense and not rambling all over the place!

Pete - I didn't know you got a kitty. Maybe I did but my brain is scrambled. I wonder if your bird was just establishing a "pecking order"? LOL

I just want to thank everyone who's posted here, and also keep passing it along if I miss posting to someone (I've missed pretty much all the newbies - apologies to all of you!) and I can't even get to all my long time friends to read your posts. But I do think of you and send you all many hugs!


Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 1/16/2010 9:43 PM (GMT -6)   
(((((((((Palady))))))))))). You are greatly missed!! I hope that computer of yours spontaneously recovers! :-) Hope you're not getting too much snow! We're supposed to get some tomorrow.

more hugs,

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 1/17/2010 12:08 AM (GMT -6)   
PaLady, Thanks for posting for us....yes we all admire you and miss your presence here. I hope all works out for you...and you can get a handle on the computer problems. I hate it computer it is complicated to me...and way over my head...of which I don't have much left. :)


Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 1/17/2010 12:37 AM (GMT -6)   
Miss you my lady!! Hope you can get your computer problems solved soon. It's not fun to go without. I have to take my laptop in for a fix and i don't know what I will do without it. Being in bed most of the time, it has become a very good friend and helps pass the time away as well as keeping in touch with everyone.

You take care of yourself now!!


Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 1/17/2010 11:03 AM (GMT -6)   
PaLady, as far as doctors files for SSDI. I know you want to know what is in your medical files before filing but you don't necessarily need to have them all in hand when filing. I'm sure it may speed things up a bit.

When I filed I had to sign release forms so that SS could request my records. They requested records from my rheumy, ortho surgeon & PM doctor and all of them responded very quickly.

This may take some of the pressure off of you. I'm not sure if Pete had all of his records before hand or not, maybe he will reply to this or other members also.
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3

Veteran Member

Date Joined Dec 2008
Total Posts : 773
   Posted 1/17/2010 11:18 AM (GMT -6)   


Sending you warm, sunny hugs from AZ.  BSJag is so correct, SSD will get the records they need and most Dr's office know to respond quickly.  Just be sure to fill out your portion completely!

You are in our prayers and although I'm not posting much, I do come on and read everyday and miss seeing your posts!

Hang in there, we love you PA!!!


Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 1/17/2010 3:51 PM (GMT -6)   
Thanks, edt, and Jag, but I do understand about the medical records issue. I am choosing to do it this way because I know that all of my doctors have NOT been prompt in resonding to requests. Some are, some aren't. And it will only take one set of records to not be in the pile to be the easiest reason for an initial denial. Now mind you I'm not ignorant of these processes, having been in health care for so long professionally, and am in practical terms expecting the initial denial. BUT I want to do everything within my power to avoid it. And I also have to get the records together for the new doctor I'll be seeing. He has asked me to give him everything SSD will get, because he will also be submitting his records, and he has nothing about me at this point. So I'm trying to get the package together for both him and SSD, and hopefully send him down a package of records in advance of my seeing him, as a courtesy to give him time to read them. He is a psychiatrist and will be helping me with chronic pain and depression, and I want him to be able to have all the info. because I think his records will be probably as important as my neurosurgeon's.

I did pick up records from my PT and my neurologist, both of whom were very nice and made me an extra set for SSD, and didn't charge me a penny. But the thing that ticked me off is my neurologist (I've mentioned before I've been seen at that practice for nearly 30 years now, 20 years by one of his partners who retired - who I loved, this guy I've got now is just plain lazy, among other things) who I've talked with SEVERAL times about disability, and who has recommended it, did not mention ONE WORD about it in his records. I thought he'd have something in there, since we had discussed it. He's also the one who has refused to prescribe the percocet, although would Rx the neurontin. If his office didn't have so much history on me, I'd get rid of him, but I can't afford to tick him off now. I'm not even getting or submitting my PCP records as she's even worse, and she's not really treated me for all this. I don't have the insurance to run around and see all these doctors.

Interesting, isn't it, how some of our doctors are great and others, well....I won't use the words here. My neurosurgeon, for example, has been Rxing the percocet and neurontin and pm valium for over 2 years (since my surgery). And I haven't been to see him in well over a year, since most of our contact has been done by phone and he's 3 hrs away. Plus he usually discharges someone to pain mangement after 6 months tops. So they've mailed me my scripts with just a phone call from me. Haven't had to pay them. Some people care. Some.

Keep me in your thoughts!!! I've got to get this browser updated somehow. But I want to keep going on this SSD and other financial stuff so maybe it's all for good reason! LOL

I do miss HW!!!!



Regular Member

Date Joined Dec 2009
Total Posts : 79
   Posted 1/18/2010 12:58 PM (GMT -6)   

We miss you too! I very little about computers, but if its only the HW site, I'm wondering if deleting the cookies would help? You may have tried this and I'm probably way off, just a thought! I hope everything with your SSD and the new doc go well!!

Pain Issue: Sub-scapular bursitis, scapular dyskinesia, nerve damage down left arm, shoulder and neck
Treatment: PT, Tens Unit, Tramadol, Flector Patches and a semester off of school!

“Pain is temporary. It may last a minute, or an hour, or a day, or a year, but eventually it will subside and something else will take its place. If I quit, however, it lasts forever.” - Lance Armstrong

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