Rocketman I hope your doses are working for you. I understand your fear after what you have been thru. But on the same note I would hate to see anyone suffer needlessly, because most CP patients end up that way a lot, and not by choice.
Your surgeries sound incredible. I know that pain, a complete blockage and abscess is what set me up for an emergency resection. That is a pain like none other and I laid in a bed out of my mind in pain praying to die. I too had draines coming out of everyplace. I always gate the NG tube. Although, my first surgery that day was not the resection. They thought it was my appendix so they took out my appendix first only to find them fine. We were on vacation in Mexico when this happened.
Before some of the new medications hit for crohns the people ended up steroid dependant. Many of them ended having their bones and joints destroyed because of the steroids and had to have joint replacements done because of this. We have a member right now that is in big trouble with that problem from being on steroids for several months.
I hear you on the career business, you have been very fortunate not to be plagued apparently with problems from the crohns. I will never go off the meds because I don't want to run the risk of getting back in the shape I was in 7 years ago. I am too old for kind of stuff. Its bad enough just having to go in the hospital with flare ups out of control.
I hope all goes well with the PM appt. Is it scheduled yet? Good luck.
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.