Welcome! I'm sorry that I didn't get to welcome you earlier. I am also dealing with osteonecrosis but in the wrist and hips. I have it at a stage 3b according to one doctor and the other says a stage 3c, which I have never heard of. Anyway, I understand your fears about having surgery but my understanding is that once it is done, that patients do really well afterward. If you have any more records from the doctors that you are seeing, then getting copies and sending them to SSDI can only help your application. Especially since this is bilateral , it is obvious that you will be disabled for some time, and if you can get the surgeon/doctors to put that in your records, it helps your application get approved faster.
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
Avascular necrosis of left wrist- maybe hips too