Good evening everyone,
Several forums apply to me, but pain is my biggest "control" issue - or lack of control, so I thought I'd just stop in for a minute. It is very late, and I'm tired. I've been reading your posts, and so glad to find ya'll here. One is the loneliest number... no one understands pain, except others who experience it.
My husband lives it with me. My crying, frustration, distress and despair. He deserves some kind of award... bless him. And on Monday, Feb. 1, HE has to undergo heart bypass surgery, 4 or 5 bypasses, including stents that were put in five years ago.
I am a stroke survivor of a right hemisphere, intracerebral bleed on 12/29/04 at age 49; have bone spurs and deteriorating spine at L5, L4, and also in the C-discs but not looking at the report right now. I have an anxiety disorder, and have taken alprazolam .5 mg for that, about 15 years - only 1-2 times a day unless there's a lot of extra stress.
I'm very conservative about taking pain meds. I have GERD, and take Nexium, 40 mg. I take Exforge for blood pressure, but I lost about 50 pounds last year (see next paragraph), so my blood pressure is really good, and sometimes I don't need that.
I'm diabetic, but only diagnosed after the stroke. Being in a wheelchair, left-side hemiplegic, might do that to a person. I take metformin, 500mg, two tablets with dinner, and my blood sugar is very controlled. I have to be careful, because I forget to eat. Stroke girl thing.
I had diverticulitis that caused me to have a permanent colostomy last July, 2009. Since then, I have had severe peripheral and sciatic nerve pain in my left leg, left buttock, back, and even in my head. In November, I was in the hospital and tests found an ovarian cyst - but "they" didn't do anything about it.
I also have fibromyalgia, but I think my doctors forget all my problems... "they" seem to think I need "therapy."
I had an allergic reaction to the Fentynyl patch in the hospital. In September, during one hospital stay for horrible nerve pain, my neurologist put me on Cymbalta, and I tried it for 3 months, but became suicidal. No thanks - and it didn't help my pain.
In November, doctors put me on Lyrica, 50 mg, twice daily, started to make me dizzy. When I threw up one night two weeks ago, I quit taking that. It wasn't helping my pain either.
My doctors keep prescribing hydrocodone/APAP - which I have lots of... but it doesn't help my pain, so I refuse to take all that. The ONLY relief I felt was a little morphine sulphate sent home with me from the hospital on December 8, but do you think ANY of my doctors will prescribe it for me? No, they write more norco or vicodin instead... what????
I couldn't get into a pain doctor before my husband has his surgery next week. He won't be able to drive now for a long time, and I'm paralyzed in a wheelchair since the stroke... not easy to get to any doctor. Plus, he is on family leave, about to have to go on COBRA, and I will have to switch to Medicare for the first time. I am terrified. My home health nurse suggests that I get traditional medicare and the prescription drug coverage - NOT a managed care plan. Such a shame that my deductibles and this plan year's maximums are already met with Cigna... but life is life.
Or is it life is a pain... thank you for letting me vent.
I have ONE morphine pill left. Been saving it for that unbearable moment. I've had a terrible cough for three days. I really need some sleep. Maybe I should take it tonight.
Blessings to all of you.