I am usually in the fibro forum but I was hoping I could get some opinions over here because I do have chronic pain. I have tried all of the "preventative" types of medicines. Almost all were designed as anti-seizure or anti-depressant so its hit and miss person to person. Unfortunately, for me, most were misses. And those that were hits didn't last long. As in they started out great but 2 months into using it they lost their effectiveness and they were really expensive.
I have been to 6 doctors in 9 months. Before being dx'd my family doctor (I call him Dr. Great Guy- self explanatory!) put me on Vicodin to deal with the pain I had all over my body while I was trying to find out what was wrong with me. And it worked- and it still works, but Dr. GG isn't a pain mgt doctor and he didn't feel comfortable leaving me on it long term. So I went to rheumies and finally got a dx and a second opinion. But like I said none of the drugs made to help fibro worked for me. So I went to a pain doctor that I was referred to that was 2 hours from home. That doc wanted me to take methadone. Ok, but he required monthly drug tests and at each one I would get my next prescription. But a two hour trip (four hours round trip) into a not so nice part of the city wasn't really doable for me because he didn't have office hours on my days off. And my employer is not so supportive of my condition.
So Dr. GG set me up with another one close to home- and this guy doesn't believe in pain medicine (duh why are you in pain mgt?) so he put me on the last medicine that I hadn't tried (I had tried one very similar) and had a bad reaction- allergy- swelling not being able to breathe and oh the hives! I am TIRED of having people tell me that I have to live with the pain. My question is WHY?
If prescription pain medicines exist why can't I use them? Cause they can be dangerous? So is fibromyalgia pain. It threatens to ruin my life every day, and a lot of days it succeeds. I see people all over these forums that are on Vicodin, Percocet, Oxycontin and all types of pain killers long term. These are good, kind, upstanding people that just want to be pain free. Why is it so hard for me to get that kind of help? And better yet, why is it hard for me to get that kind of help without being looked at like a druggie??? I have a legitimate need and dx of a pain disease, why is it so hard for me to get help? I have to work (about 50 hours a week at a warehouse and no, quitting is not an option). Please can anyone help me go about getting the medicine that I need to control this pain through a doctor? I don't mean to sound rude, but I really don't want suggestions of diet, exercise or supplements. I already do yoga, take ALL the supplements that have ever been thought to help. I need help learning to make these doctors understand what I need. And also what types of doctors are the best equipped to help me stay on the right path and control of these medicines. Please can anyone help me?? Oh and i am sorry if I tend to ramble I am just so frustrated and miserable. Please help me. Please.
Dx'd with Fibromyalgia, High Blood Pressure, TMJ & Migraines
Atenelol (50 mgs/day) Vicodin (1000mg as needed). Oh and a LOVELY retainer for the TMJ!