Any suggestions for my symptoms?

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Veteran Member

Date Joined Jun 2009
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   Posted 2/6/2010 6:04 PM (GMT -6)   

In the past I've had days where my body ached all over like I have the flu (no other flu symptoms) but anymore it is a daily thing, mostly in the afternoons.  I also feel like I may have a low grade fever but haven't really checked it.  I thought it may have been caused by my oxycontin wearing off early so a couple weeks ago I called my PM and got it ok'd to try taking it every 8 hrs. since I had some back up supply from appts being less than 30 days apart.  This increase hasn't helped.

  I'm not working outside the home but do the normal laundry, cooking and general house cleaning.  It's just my husband and I so I'm not overwhelmed with work.  Also, the aching is all over not any specific place, from the neck on down to the toes.  I've always had issues with muscle spasms that no muscle relaxer has been able to control, I've tried most of them.

Any ideas would be helpful.  I've been tested for RA with negative blood work results but I know that doesn't always mean it's not there in the early stages.

DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 2/6/2010 6:52 PM (GMT -6)   
Hi, Jag,
I'm not at all sure, but I can say from my standpoint I've been aching and hurting far more of late and I know some of at least is due to all this crazy weather we keep having, and especially the bitter cold temps. I know you're over in northern Ohio, right? If so you must be getting about the same junk weather wise (before you pass it off my way, LOL!).

I also have so much sinus drainage it's pathetic so it's always a battle with a low grade sinus infection just around the corner. I bought that netti pot device for washing out the sinuses, but of course it's still in the box! My bad!

Wish I could help more.



Regular Member

Date Joined Jun 2008
Total Posts : 44
   Posted 2/6/2010 7:20 PM (GMT -6)   
Just a thought, but it doesn't sound too unlike Fibromyalgia? I might be wrong, it's just a thought, I wonder if anyone else agrees?

If I'm correct, a tricyclic antidepressant or something like gabapentin might be of some aid to you. What does everybody else think?
One of my favourite quotes from House:

Cuddy: Did you just take two Vicodin?
House: No, it's an antidepressant, I was told to take two every time you walked in the room.

Veteran Member

Date Joined Nov 2008
Total Posts : 2859
   Posted 2/6/2010 7:35 PM (GMT -6)   

Sounds like me...sounds like it could be  fibromyalgia.  Of course I'm not a doctor but the achy flu like symptoms that feel like you have a fever is what I have almost every day.  Might run it by a rheumotologist.  The cold really effect fibro symptoms along with low pressure fronts that move in and out.  Hope you feel better and get an answer.


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil

White Beard
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Date Joined Feb 2009
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   Posted 2/6/2010 7:51 PM (GMT -6)   

Do you have any other symptoms, such as stiffness?, you said you have problems with muscle spasms, are they all all over? Is there anything that causes them? I ask this because allot of the things you describe I also have. As for the muscle spasms I get them everywhere, from my hands to my feet in my neck and the inside of my legs. Most muscle relaxants did not work, but when they put me on Baclofen every eight hours 24/7 and finally got the dosage right 25mg and it has helped the spasms allot and also the pain!

Do you have any balance problems? or numbness and tingling in your legs or feet? or problems with movement? Any swallowing difficulities? I also have these symptoms and I have yet to find out what is causing them, I was once told I had Parkinsons and I was on medications for it for over 2 years but after going to Rush movement disorder center in Chicago they ruled that out and took me off those meds. But did say I had some kind of movement disorder but further testing needed to be done. Which I have yet to find a Neurologist that will do them! You seem to have allot of the same disk problems that I have, and I was just wondering, if you had some of these other things also? Afternoon time I often get chills and extreme fatigue along with increased pain. Allot of my other things, balance and swallowing difficulities, increased pain, tend to be cyclic. Do you notice any pattern to some of the things you have?

I guess I don't have any answers for you just allot of questions. If you find any anwers ,make sure you pass them along!

Good Luck to You Jag

White Beard

Forum Moderator

Date Joined Jan 2005
Total Posts : 9255
   Posted 2/6/2010 7:52 PM (GMT -6)   
Hi Jag,

I agree that you may want to head over to the fibromyalgia forum and see what you think. Read some posts, check out the Fibro 101 thread and ask over there what people think also. Your symptoms are those of someone with fibromyalgia BUT they can be other things also. Fibro is diagnosed by ruling out other possible causes of the pain plus most doctors test to see if you have what are called "tender points". Those are described in that Fibro 101 thread.

As for a doctor, your rheumatologist would most likely be the one to confirm something like that but in some cases a PCP can do it also. In a way I sure hope it's NOT fibro but in another way it would be good to know it's not a life threatening disease.

Let us know what you find out...OK?
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

Regular Member

Date Joined Feb 2010
Total Posts : 358
   Posted 2/6/2010 8:33 PM (GMT -6)   
My first thought was Fibromyaligia. I was just diagnosed and the symtoms sound awfully familiar. I agree, check out the Fibro posts and google it. Take care.
Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes and then some

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 2/6/2010 8:46 PM (GMT -6)   
Hi Jag,

Sorry to hear that you aren't feeling so well. I wish I could help, but I don't really have any ideas or suggestions sad, but it does sound like you've gotten some good thoughts & suggestions from others. Hope you feel better!


Forum Moderator

Date Joined Feb 2003
Total Posts : 16795
   Posted 2/6/2010 8:52 PM (GMT -6)   
Hi Jag,
When you get a dx would you please let me know. You have described me to the letter, thats is almost scarey, lol. I get this flu feeling you are talking about quite frequently and I chaulked it up to being exhausted. Usually I will take some Tylenol and go to bed for a little bit and usually feel better when I get up. But, I do run low grade fevers a lot from the crohns and cellulitis infections. I do not sleep like a normal person. I am up all night, seriously, it is usually around 5-6 am when I go to sleep and it is usually 7-8 am and I am right back up. If I come sit down at the computer in the afternoon then I nod off for an hour or so. Problem is I stay worn out all the time. I do have to be careful when out because I have nodded off sitting at red lights.
I know my sinus/allergy problems can make me feel this way too. Right now mountain cedar is at an all time high and my face is so swollen, especially under the right eye. I do have meds for the allergies but it has not helped much lately.
I hope you can find out what this is that is going on. Take care.

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 2/7/2010 6:57 AM (GMT -6)   
Thanks for all your suggestions, you are the greatest!!!

I was dx'd previously by two rheumatologist with fibro. One was bound and determined that Lyrica was the answer. It did nothing for my pain and the side effects were awful. When I would tell her this she's just increase my dosage and make another appt. The other one had me trying every anti-inflammatory known to man. I tried Cymbalta but the sexual side effects weren't good. She did get the Neurontin right though and am still taking it. When I asked her for something stronger that tramadol for pain she told me she did not prescribe narcotics and that I should see a PM doctor.

My PM doctor said right off that I did not have fibro. They did start treating my spine issues that needed addressed & prescribed me narcotic meds. I have an appt tomorrow for a nerve block injection and will ask for an appt. asap to discuss what is going on now. The fibro seems to be rearing it's ugle head more now.

It just gets so discouraging when there are so many things happening to our bodies at once. I've been seeing doctors for 7 yrs now and still don't have that perfect mix for my pain. Better stop now I'm starting to rant.
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 2/8/2010 12:43 PM (GMT -6)   
   Dear Jag,
       Good morning *warm huggs* I hope your appointment went well. I am sorry you are getting hit with all of this at once. It must be exhausting and I wish more than anything there were some way that I could help. I was noticing that your symptoms sound alot like mine, but you already have bone problems. Another thing I was thinking, and your PM would be able to test for is psoriatic arthritis ( ? Reguardless, of the out comes I hope you are resting right now and that your appointment goes well today. When you feel up to it, let us know how you are doing?
       Rest well and know your in our hearts and prayers here. Stay strong!
    Dear White Beard,
       I was wondering if you have any conditions that might be causing something called "tetany".




Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



Post Edited (Dani Henson) : 2/8/2010 10:57:26 AM (GMT-7)

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 42612
   Posted 2/8/2010 3:17 PM (GMT -6)   
It does sound an awful a lot like fibromyalgia, though I am surprised your reumy said otherwise. I would get another opinion if I were you. Hope that I didn't read that wrong. Do check out the fibro forum. Check out "fibro101" there is a wealth of information there.

Either way, I hope that you start to feel better soon.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

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