It's dark:30 in the morning and as always, my pain woke me to the screaming point. I lay here in bed with my computer typing to the only people I know understand this kind of pain. I had only been alseep for 2 hours, but that seems to be about the length of sleep I ever get anymore. I've been doing breathing techniques, big breath in *in with the good*, slowly release the breath *out with the bad*. I gave it 10 minutes in meditating and it's still singing a sour note in my body. If I had known then, what I know now, I would have certainly taken better care of my body years ago. But then I was apparently born with my Syrinx so, no matter what, it would have probably presented itself. As far as my sister the brainy MD goes, she's "God" to my parents (my Dad and step mother...the evil kind!, no seriously) and whatever she says, goes. What I do is I just don't talk to her, maybe once a year. My Dad calls me about once a month and I just say I'm great, everything is good. Oh Stray, it burns me up too! I mean I could just stew about it, but I accept that my sister, the person I was closest to for many years is not the same person she used to be. Why she needs to keep my Dad stirred up about me, I'll never know. So, the thing I know most is that I have my own family and I will survive. I have been looking for a pm doctor and have made an appointment with my neurosurgeon so that he can look at the Syrinx. The last time I saw him it was from C-1 to C-4, now according to the last MRI at the pm group, it is now from C-1 to T-1. I will see this doctor and I'm sure he can find a pm doctor in my area of Nashville. Thanks for letting me vent and for validating the issues I have. It mean so much to me to be able to just be.
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.