I'm sure not the expert on disability here. I'm stumbling around in that labrynth myself. Straydog is kind of our resident "expert", since she worked in that area for many years, and I'm sure she'll be along soon.
Since I've got some academic background, I can understand where you're coming from - especially the desire to want to continue contributing to your profession. I would think, though, that working full time versus contributing occasionally to papers might be different, although I know I've heard straydog say it can be "risky" to continue working after you receive SSD. Maybe it's also going to relate to whether you are just involved in analyzing data and writing activities, or whether you'd be going off on those trips to Hawaii. And what the basis for your disability is - inability to do physical activities or things like difficulty thinking clearly (which would make it difficult to author papers, etc.). I really feel for you, as participating in our profession can be part of what's brought meaning to our lives.
Thanks so much for your reply, PALady! I'm very glad that someone understands where I'm coming from!
My illnesses affect both my abilities to do physical activities and mental activities. And I haven't been on an observing run in a very long time. I haven't been to a scientific meeting for quite some time either. I probably will never be able to do any of those activities again....
I figured that it might be risky (if I'm on SSDI) to be involved in a paper....it might be misunderstood, exactly the way that bsjaguar apparently misunderstood my post.
I want everyone who reads this thread to understand that if I am able to do any work on a paper, it is EXTREMELY difficult for me!! I have severe brain fog and memory loss at times, I'm also frequently in excruciating pain; I have vertigo and nausea and headaches and my back, neck, rib cage, feet, hands, etc. etc HURT very badly. Not simultaneously thank goodness, and not all of the time....my various body parts usually take turns giving me grief.
Of course, this is why I'm posting on this forum.
If I do work on a paper on any given day I am fully aware that I will probably pay for it by feeling worse the next day. This is the nature of fibromyalgia....and of the other autoimmune diseases that I suffer from. I know many of you understand how this works. But it is important to me to try to do this.
Yes, it does give meaning to my life; it's part of my identity as a person. I would HATE to give it up completely.
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Post Edited (nasalady) : 2/19/2010 11:08:02 AM (GMT-7)