Old Member...New Name....New situation

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Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 2/19/2010 9:02 PM (GMT -6)   
confused Hello All!
Several months ago I was posting quite regularly on this site under the screen name PrayingforRealRelief.  I requested removal from the site for personal reasons, but have been lurking to check on the HW family since.
I am now ready to re-enter the group, assuming the group is ready for me to re-enter......
As an update for those who may need refreshing on who I was/am.  I had suffered a massive herniation in L5-S1, with TLIF almost a year ago.  I've had all the shots and nerve ablations (that they can do) since leaving the board.  I've also had additional diagnoses of failure to produce human growth hormone and a severe vitamin D deficiency.  I've started using HGH daily and have now been denied my SSDI (1st Application) and have filed an appeal.
I wanted to re-introduce myself for those who do not know me and to say hello to those who are kind enough to remember.  My signature line includes additional medical information that would be redundant to repeat again in this post.
I very much enjoyed my time on the boards and look forward to more fellowship. 

Regular Member

Date Joined Feb 2010
Total Posts : 358
   Posted 2/19/2010 9:28 PM (GMT -6)   
I'm fairly new, but I am so glad to learn that you are feeling strong enough in so many ways that you want to rejoin the "family"! I'm glad to meet you! I hope your appeal goes well and that you don't have to go any further. Oh, your info didn't show up, maybe you need to add it again?
Take care,
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder, Panic Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 2/19/2010 9:38 PM (GMT -6)   
Thank you for the welcome and for the info on the signature line. I hope it will be attached here....
Previously PrayingForRealRelief....

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 2/19/2010 9:49 PM (GMT -6)   
Hello RetiredMom! Welcome back to the forum! We always welcome members back who find the need to take a break from the forums. I hope you are doing well, and the hope the SSDI will get approved the second time around. I'm not sure why, but the problems that members or anyone for that matter, who needs SSDI and are refused, has become a personal thing with me. I'm sure there will be several members who knew you, and will welcome you back in a little bit. Hang in there!

DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 2/19/2010 10:48 PM (GMT -6)   
Hi Retiredmom...

Welcome back to the board! Glad you are back. Sorry to hear about your SSDI... but hope you get approved this next time around. I'm in the midst of a long battle for my SSDI, too... For me, it doesn't have to do w/ getting approved (every reviewer has said I have plenty of stuff for approval...which I guess is a good AND bad thing!); but, about my work credits, etc... I have to prove I've been sick for a certain period of time for them to go back and use my work credits from before I became a mom...

Anyway, I noticed you were found to have a Vitamin D deficiency. I just got a call from my endocrinologist today; the "norm", I guess, is in the 30 to 80 range. Mine is a 5. I have to go in on Monday and start taking replacements 2x a week for 5 weeks, and then more blood work. Are you doing something like this??

I have EXTREME weakness right now, too. Talking, eating, walking feels like too much. I feel like I have weights on every muscle. I'm wondering if these symptoms are somewhat related?

Finally, as I've read more about the Vit D thing today.... I see how it's linked directly to Chronic Pain, too.

Anyway, just curious what your doctor told you and what "treatment" you are on.

Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; etc etc

Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation

Meds: MS Contin; Dilaudid; Actiq; Soma ; Neurontin; Atenolol; Midodrine; Phenergan/Zofran/Reglan; Effexor(depression)/Ativan(anxiety); Synthroid; Prednisone; and on the list goes...

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 2/19/2010 11:16 PM (GMT -6)   
Hi, Retiredmom,
Welcome back. Yes, I remember you (as well as I can remember anything these days! LOL).

A lot of us are in that SSDI application process together. One day at a time, I guess, just like we do with the rest of our lives with CP.

Glad you decided to come back.


Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 2/20/2010 4:02 AM (GMT -6)   
Hi Retiredmom,

I'm fairly new here, so welcome from me. It's good to know you can come "home" isn't it?

I'm sorry to hear of your struggles, and I hope that you are able to get your SSDI without a lot of delays - it would certainly be a stress reliever. In the meantime, you know that we're here to listen and share.

I noticed in your signature that you had a Nissen that failed. I'm so sorry to read that. I had mine done in 2004 and other than some issues that arose afterwards that were partly related, it's been quite successful and certainly one of the better things that I've done. Is there any chance you would/could have yours redone?

Wishing you well,

Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 2/20/2010 11:36 AM (GMT -6)   
Hi all and thank you for the welcome back!

Just to answer a few of the questions, the Nissen failed immediately and I had a horrible surgeon, who didn't even sew up the incisions correctly. I will not be having this re-done, unless absolutely necessary. I no longer vomit daily, but I do have to take prevacid 30mg twice a day (still) and follow up with TUMS. I also have worse esophogeal spasms now than I did before, but I will always have them....I've just learned to live with the changes.

Regarding the vitamin D......They found that about a month ago, just after I was diagnosed (by endocrinologist) with producing no Human Growth Hormone. I have never even heard of the HGH deficiency in adults and was quite surprised when I read up on it after diagnosis. I thought (wrongly of course) that I had to be producing HGH because I am overweight. Apparently that is one of the reasons for the problem in the first place. It's very interesting reading if anyone wanted to check it out. Immediately after diagnosis, my PCP wanted to do a vitamin D test and my readings were a 9. The ranges they gave me for normal were somewhere in the 30's to the 70's. They gave me very high dose vitamin D to take, but the 50,000 units scared me too much to take it (a little OCD, I guess). Anyway, I started taking OTC vitamin D or D with calcium twice a day. I felt like I could add this to my meds without stressing so much (and we'll check the numbers again soon and go from there). I too felt like I was too tired to move, but then the Endo says this is from HGH and the PCP says from vitamin D.....yet again some conflicting information.

If I've missed any other questions or comments, I'll try to catch them in a re-read. Memory problems are still a REAL PROBLEM and I have to review before I can catch everything up.

Thank you all again for accepting the new "medically retired" me back into the fold!!!

(For those who may wonder, the group did nothing to cause my leaving....it was mostly medical and mood related and was not a result of anything anyone said or did). This has always been a wonderful group of people!!!
Previously PrayingForRealRelief....

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 42610
   Posted 2/20/2010 2:50 PM (GMT -6)   
Hi Retiredmom,

Welcome back to the forum. I am usually on the fibromyalgia and depression forums, but pop in here now and then.

When you take the vitamin D make sure it is D3. This will help you in a lot of ways, and just plain makes you feel good. Which is something that we all need. It really helps with fibromyalgia, as it gives us energy and helps with the pain. And like I said, it just plain makes you feel better.

The D3 contains Cholacalcifloral (sp) which I guess is what makes it help us. I think that this time of year it is low in a lot of us due to the lack of the sun. We are having sunshine today, I just took my dog out for a walk. It was beautiful. In the mid to upper 30's here. That is a treat.

I hope that you have a wonderful day and I am glad that you are back with us. Take care.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

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