I am curious about this research on how well others understand our pain....you can go to my profile and email me privately if you want to....
Here is what I think about what others percieve.
People can only understand what they understand. They know what a headache feels like, a stubbed toe, a burn, getting a finger caught in a door, and so on....but most people cannot understand what Chronic, neverending, constant pain actually feels like unless they too have been through it. It's not that they don't care or can't sympathize...it's just that their brain can't comprehend it. My own mother is so anti-drug (for anything) that she couldn't see how or why I would take the pain pills constantly...until she hurt her back. That's what I say, when it happens to you then you will understand. and she did. kind of...she still won't take an advil unless she is writhing around in pain...and she will NEVER take narcotic pain killers for more then a couple of times. and that's only if she was dying....but she has a better understanding of me and my pain.
It's kind of odd to me...She has been here with me since the very first incident with my back way back when I was about 20...she was standing there when I went down and couldn't move for a few hours before I finally gave in and let her call an ambulance...she's been there through the times that I couldn't stand up straight for months...been there through all the procedures (ESI, Caudal blocks, Mri'S, mYELOGRAMS, PT) , through the surgeries (first a lamenectomy then Spinal Fusion)...she's seen me lay in bed for days when I ran out of pain pills early due to pain...and yet it took her own incident with back pain for her to have just a little bit of understanding about what I go through on a daily basis. Why? Why can't they just take it a face value? Is it because it's easier to not think about it? I don't know....but I'd sure like to know how to get others to be a bit more empathetic when they see me get out of my car in a handicap spot...and instead of mouthing off that I look like I need to park there in a sarcastic manner they would just keep it zipped....know what I mean?
I have been a spectator for so long..Now it's time to participate.......
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/ 30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1700 mg. at night..Glipizide 10mg. 2X in the morning and bedtime
Lantus 50 units at bedtime with Solostar Pen
Byetta 5 mcg. 2X daily