What's happenig with you? CP roll call!!?

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Stella Marie
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Date Joined May 2005
Total Posts : 601
   Posted 3/5/2010 3:56 AM (GMT -6)   

If too long goes without reading a posting from members, I too, find myself wondering what is happening with one person or another in the CP family here on HW.  I realized that sometimes our family members do not feel “they” have anything of value to add to a posting or that anything of interest or should we say “post” worthy happening in our lives.  In order to feel a tad more connected; it would be nice to hear how everyone was managing winter.  So if you have not posted for a while or even if you just posted a day ago, let us know what is happening with you.  Since we don’t just happen to bump into one another here or there – how about a quick CP weekend roll call.  Let’s us know what you are up too.

Stella Marie 

Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Med - too many too list or even care about!



Stella Marie
Veteran Member

Date Joined May 2005
Total Posts : 601
   Posted 3/5/2010 4:19 AM (GMT -6)   

Some how I’ve been caught is some type of “injection” Groundhog’s Day movie.  You remember the one where the main character relives the same day over and over again.  I now know that feeling plus what it would be like to be a human pincushion.  I ended up with a regular flu shot, one for H1N1, a pneumonia booster, an every 5-year tetnus booster, and finally a vaccine for Shingles.  Then my doctor went and “discovered” my B-12 levels were low and so that is now a monthly injection.  On a sadder note, we had to put our dog “down” due to an aggressive cancer she developed at a young age.

Stella Marie 

Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atroph;  muscle spasms, muscle pain, neuropathy  & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – an  intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Meds - too many too list or even care about!



Post Edited (Stella Marie) : 3/5/2010 3:23:22 AM (GMT-7)

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 3/5/2010 4:37 AM (GMT -6)   
I'm so sorry to learn about your dog. Losing a pet is a really difficult thing, at least for me it always has been. They become so close to us.

And as far as being a human pin cushion - yikes! I think we ought to get to poke our docs back once in awhile! :-)



Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 3/5/2010 8:58 AM (GMT -6)   
Good Morning everyone,

Stella, I'm sorry to hear about your dog...it's such a difficult decision to make, but at least she's not in pain anymore, and that's a true gift.

I haven't had any pin cushion moments for quite awhile, but I am scheduled for regular blood-work, which is going to be a nightmare. I have extremely tiny veins that tend to either collapse or roll when trying to get blood, or start an IV. Last time, it took just over an hour to get six tubes of blood, and they had to use both arms and both feet to get what they needed (I once had a surgery postponed because the doctors couldn't find a vein to start an IV - they even tried to start a central line in my groin with no success. Needless to say, I'm not fond of anything that involves needles (thank heaven I don't freak out!!)

The only other thing going on for me is that I've started two new meds, in addition to the Oxycontin, Tramacet and Cymbalta I currently take. I slept like a log last night and at one point, got up to hang out in the treehouse in the back, just to stay cool. That's pretty much the excitement in my life.

Hope everyone has a great weekend, with as little pain as possible.

Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily

Veteran Member

Date Joined Jul 2008
Total Posts : 1560
   Posted 3/5/2010 9:01 AM (GMT -6)   
Awww I'm sorry to hear about your dog Stella. I know how attached we as pet owners become to our felines and canines. My dogs are old as well and the black lab is getting lumps that cannot be explained. I'm afraid that it won't be long before we have to put her down as well. The yellow lab is the same way and he's gonna go down with a fight I know this. The only one that seems to be healthy is the chocolate lab.

Hugssss hun for all the pincushion feeling your having. I know how ya feel, I have to go back in ten days to get another full workup to see if the levels have normalized. On another note I still haven't recieved my new script for bt meds. The nurse told me to wait until my mail comes in today and if its not there to call. hmmmmm, mail doesn't come until 10-noon so this should be fun since my doc closes at noon today :-(


I live to "Tame My Pain!" 

Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 3/5/2010 9:22 AM (GMT -6)   
Stella, I'm sorry to hear about your dog. I lost my Cocker, Abbey, to cancer and I cried like a baby, so let it out.

I know how you feel with the injections. I've been going through diagnostic injections in my lumbar spine but if it helps it will all be worth it. I thought tetnus injections were good for 10 yrs? hmmmm?

Good luck with your injections. Aren't the B vitamins the ones that can make you feel tired if your low on them?
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3

Veteran Member

Date Joined Jun 2007
Total Posts : 702
   Posted 3/5/2010 9:28 AM (GMT -6)   
stella sorry to hear about your dog. That is very tough. Thanks for starting this thread, I havent been mia, but would like to add a post if thats ok.

My neck has been an 8 on the pain scale and I can not take it! I talked to pm and they set up another cevical epidural in 2 weeks. I am so glad, but I am afraid I wont be able to wait that long. It literally feels like my neck is going to snap in half. ugh!

I have been really depressed. I am sick of being in pain and sick of being limited. I went to m y therapist last night and cryed my eyes out. I see my psych np today so hopefully we will adjust the meds. She is brand new to me so i am not sure what to expect. I have been doing everything in my power to get better and to not be getting anywhere. But on the bright side, accupuncture is really helpful. I hope everyone is doing ok!
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 3/5/2010 9:50 AM (GMT -6)   
Hi stella,

First, I'm sorry to hear about your pet. They can bring so much joy into our lives and help CP (and others) so much.

I love the idea of this thread. It really gives the members a way to communicate without feeling like they are taking up valuable time or space better used by others in worse pain.

Since having my Nerve Ablation (sp?), I'm finding significant relief in the back area (except the ones they couldn't do). This, along with an increase in pain meds is making a real difference in my life.

I've also been diagnosed with an extremely low production of human growth hormone and a vitamin D deficiency. For thoses not familiar with HGH deficiency, please look it up. I was amazed by how much it affected my general well being and my cognitive issues. Within two weeks of starting the daily shots, my memory had started to come back. It's been amazing! It doesn't stop pain or anything like that, but it does give you the feeling that you can get up out of the recliner and actually move (if just for a little while) and being able to remember what you got up for has its perks too. I don't want to be too detailed, but the pituatary gland is the master gland and a malfunction in it can cause all sorts of problems. I was amazed that noone had figured this out sooner. I've been trying to tell so many doctors for so long that I thought my problems were physical. This Dr was the absolute first one to put everything together and prove that it was. This also includes the depression/anxiety/High blood pressure/Lipid profile abnormalities, secondary cushing syndrome, degeration of bones/teeth, menstral/hormonal problems, and many more issues.

I used to post on this board quite regularly under the name "prayingforrealrelief", but left for a while. I'm now medically retired and use retiredmom. Although I quit posting for a while, I was still a lurker and kept up with so many of my HW friends.

Best to all!

Regular Member

Date Joined Feb 2010
Total Posts : 66
   Posted 3/5/2010 10:55 AM (GMT -6)   
Hi Stella ~

Great thread idea! :D) Thanks so much for posting! I am SO sorry to hear about your dog....I can't imagine such a loss.....my dogs are truly my sanity ~

This winter has been rough for me.......the cold causes my pain to creep up to an 8-9-10 on a daily basis. :( I am about to go in for my trial implant for my Neurostimulation Therapy....praying it goes well so I can have it implanted soon. With the changes made in my meds, I haven't felt like me in a while - and frankly, this forum has helped me tremendously!

Hope all of you are having a tolerable pain day!

Cardiomyopathy, Celiac Disease, High Blood Pressure, 2 Failed Fusions @ L4, L5, S1, 2 Failed Fusions @ C7 & C8, Implantible bone growth stimulator cervically, and soon to have Neurostimulation Therapy to treat lumbar area, Chronic Pain Sufferer for 8 years, take several meds daily to survive! Praying for a miracle and fighting through the pain daily ~

Forum Moderator

Date Joined Feb 2003
Total Posts : 16796
   Posted 3/5/2010 3:13 PM (GMT -6)   
Stella Marie I am so sorry to hear about your dog, it breaks our heart even tho we know we are doing the right and honorable thing for them. I had to do the very same thing for my Jaker last summer due to cancer and I still cry for him. He was my buddy and shadow, so loyal to me.

Yikes, on the pin cushion thing, I hear ya. I do monthly B12 shots and thats it for me. Take care.

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Post Edited (straydog) : 3/7/2010 3:29:03 AM (GMT-7)

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 3/5/2010 7:49 PM (GMT -6)   
I am very sorry to hear about your dog!  I am a dog (animal) lover.  I couldn't live without a furry buddy!  I have two dogs, a cat, a horse and other various critters. 
I read almost everyday.  I just don't post very often anymore.  I am hanging in there.  There is a huge controversy in the world of MS.  It is a surgical procedure that hasn't been proven nor is it approved.  There is some anectodal info to say this could be very helpful for MSers.  It is hard to know whether you should take out a big fat loan and run off to Poland or Italy to have this procedure done, or wait to see if it gets approval in the US.  The problem with MS is it is unpredictably progressive so you never know.  Do you wait and hope for approval and pray for minimal progression............and if you do progress will you spend the rest of your life saying "what if I had done it."  Or do you run off to Europe and slide past the US process of approval in order to head off progression spending about ten grand.  Interesting situation.
Gretchen  ~  diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 3/5/2010 7:55 PM (GMT -6)   
Hi Stella,

Thanks for starting this. I'm so sorry to hear about your dog, that is very tough.

I'm not doing great, but not doing horrible either. I guess I'd call it "okay." I'm hanging in there. I've been having a hard time with depression, too. We just did a whole bunch of genetic testing on my liver enzyme pathways because I am so resistant to medications (unfortunately pain meds and antidepressants are high on the list of meds that don't work for me - my doctors say that they've never seen anyone as resistant to medications as I am) & the tests came back with some really bad, but interesting results. Out of the 3 major metabolic pathways, 2 of mine either don't work or are highly dysfunctional. The good thing, though, is that we were able to find one anti-depressant that I haven't tried yet that according to the results of the study, should work for me, so I'll be starting that this weekend. Hopefully that will help with the depression, now we just need to get the pain under control. That's a little more complicated. My best hope there is a neurostimulator, but my evil insurance company won't let me get one. I'm fighting them, but if they say no to my latest appeal I'm out of luck for good -- so cross your fingers & say a prayer for me!


Stella Marie
Veteran Member

Date Joined May 2005
Total Posts : 601
   Posted 3/5/2010 8:48 PM (GMT -6)   
Thanks you for all the caring messages regarding my dog "Majic". It is great to hear from everyone. Please keep posting, we all want to know how YOU are!

Yes YOU!

Stella Marie 

Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atroph;  muscle spasms, muscle pain, neuropathy  & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – an  intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Meds - too many too list or even care about!



White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 3/5/2010 9:41 PM (GMT -6)   

I am sorry about you losing your dog, they do become members of your family, and it is a difficult loss! I do wish you well! The last year has probably been the most difficult one that I have ever had! I thought the Cervical Disk Fusion in September was bad enough, along with all my other back problems, then the nasty long drawn out divorce along with it! And then the added dental problems which I still have not gotten fixed yet! And of course now the added cervical disk problems I have had! I had an epidural over a week ago and it has done nothing! The pain in my neck and back of head is as intense as it ever was! I am to get another epidural steroid injection this coming Wednesday, I keep hoping that it will finally work! Although I am on Baclofen for my muscle spasms and for the most part it works very well. I do have periodic bouts of muscle spasms even when I am on the Baclofen, sometimes they last for just a few days other times a few weeks! I hate them because I never know where they are going to hit next, my hands or arms or in my legs or feet, or in my back or neck. It is just about like if the Baclofen stops working! During these times my pain increases immensely. I still post some, but it is hard to get in the mood. If this follows the same course as the many many other times, these increased spasms and pain will evetually pass. I just wish it would hurry! Enough about me! I like most everyone else here in the forum am hanging in there and doing the best I can. We all do that, and try to support everyone else along the way! I do wish everyone on the forum WELL!

White Beard

Regular Member

Date Joined Jul 2005
Total Posts : 229
   Posted 3/6/2010 12:13 AM (GMT -6)   
Dear Stella I'm so sorry to hear about your dog. They are like children to us. When I was in nursing school we had to put down our dog. You would have thought that we had put down my father or something! We all cried for days.

Dear White Beard....My prayers are always with you as our paths are very similar. I have had a horrible week and it doesn't seem like the coming days will be any better. This RSD is a killer! It has now migrated to my left shoulder and arm also but the left one remains the worst. Nasty, nasty pain and spasms. When will this nightmare ever end?
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.
Find blessings in every day!

Regular Member

Date Joined Jul 2005
Total Posts : 229
   Posted 3/6/2010 12:15 AM (GMT -6)   
Sorry about the error in my note. I meant to say that the pain has now migrated to the right shoulder and arm,too. The left arm and shoulder is so painful that I can think of nothing else.
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.
Find blessings in every day!

Forum Moderator

Date Joined Jan 2005
Total Posts : 9255
   Posted 3/6/2010 12:31 AM (GMT -6)   
Great thread Stella!

I'm another who understand what losing your 'best friend' dog is like. It's a different kind of pain that's hard to handle. Know that he loved you so very much and dedicated his life to you. A gift just doesn't get any better than that. I will say an extra prayer for you and him to night.

For me...I'm on the upswing of a nasty virus piled on top of upper respiratory infection...what a mess!...lol But at least this winter when it hit I didn't waste any time getting to the doc for help. It sure beats several ER runs and 2 months trying to recover.

And on the fun side, we're taking puppy to 'school' once a week. Hubby went alone with her last weekend and did awesome. They came home and showed me all they learned. We'll be heading out in the morning again...just the 3 of us...and have a blast. This little girl has our hearts in her hip pocket. ;-) I'll ask hubby to get some new pictures posted and will get the link up soon.

"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 3/6/2010 12:36 AM (GMT -6)   

So it is the RSD that is causing your problem I just posted on your thread wandering if it was your cervical spine that was giving you your problems. Your condition does worry me, and causes me concern! Yes some times it does seem like our problems with pain is similar! Nurse2 I do keep you in my prayers, I do wish only the best for you, and I so wish I could take away your pain and your spasms, may Gods Peace be always with you nurse2!

White Beard

Regular Member

Date Joined Jul 2008
Total Posts : 329
   Posted 3/6/2010 8:21 PM (GMT -6)   
Hi everyone!

Things are going crazy as always in my corner of the world. Right now I am just gettng over a massive cold/flu/sinus/respritory infection. That thing kicked my butt!!!

Pain wise I am doing ok, had some really bad days but also some really good ones. The new med (methadone) helps but I am seeing the doc on Monday to see if there is something out there that will not make me sleep all day, everyday since that is a side effect I just cannot handle.

Take care,


Hysterectomy at 25 : 4 laproscopic surgeries since 24

Cervical Stenosis between C 2 and C6 and two bulging disks located C2/3 and C4/5

Meds - percocet  3x day : Methadone 10mg 1x day :Amrix 15mg 1x day: Pristiq 50mg 1x day


In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 3/6/2010 9:37 PM (GMT -6)   
Wow Stella sorry about your beloved pet..
Thanks for starting this thread..
Well in December I had injections done and started to cough at night, so I went to my asthma doctor (who treated me badly) said that I wasn't coughing now
and that it was all in my head, so I got worse from that and ended up with pneumonia, nebulizer treatments and I just finished off my third round of
antibotics (Levaquin) and had a 5th chest x-ray yesterday, for which I'll get the result soon. This is my 4th battle with pneumonia and I just don't know
why I'm so susceptible to this, I had the shot for this years ago and had a reaction to the shot so I don't know if I can get it and my back has flaired bad because
of it, and I'm still trying to get back to my normal routine, my house is a mess and laundry behind and my husband still can't sleep with me and my daughter
is do to come home for spring break on Friday. So, for me this winter has sucked and that's putting it mildly and I hope I don't get edited for that...
Stella Thanks for taking the time to ask about us, it was nice of you and I hope your doing good
Lots of soft hugz to everyone

Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 3/7/2010 2:22 AM (GMT -6)   
Dear Stella (I love that name , it so ''A Streetcar Named Desire ''!) I'm so very sorry to hear about your doggie , as a total animal lover I know how hard this cn be , its like losing a family member and closest friend .I certainly hope and pray the treatmant your receiving from yout doctor helps you and I hope when the time is right you'll consider going to an animal shelter and getting a new friend , there are so many that need a loving home and a great person like you to love ad care for them and to love in return .mikel
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines - Oxycontin , percocet ,  Celelbrex , lasix .

Veteran Member

Date Joined Nov 2008
Total Posts : 1037
   Posted 3/7/2010 3:08 PM (GMT -6)   
AWWW Stella....So Sorry to hear of your loss....and yet you still are concerned about all of us!!  What a Great Person you are.  I am not doing well, but this is par for the course.  I wrote in a post about what I'm going through so I won't rehash it here.
I've been away from the forum for a while but I'm back.... Thanks for worrying about all of us.

I have been a spectator for so long..Now it's time to participate.......
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   


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