I'm Bob and I live in mid-Missouri. In 1997 I had an accident that crushed the main nerves in my left leg and groin. Because nerves die from the furthest point away from the damage, it turned my foot and ankle black first even though the crushed nerves were way up high.
After going through Workman's Comp hell for 18 months, I was finally able to use my own insurance and my own doctors who have been great ever since. By 1999 the RSD had continued to spread upward towards the knee on the left side and the pain just kept getting worse and worse. That's when I was forced to give up my job as communications oprator for the State of MO and start on OxyContin. 3 months later I also landed in a wheelchair.
As the damage grew, so did the pain so 6 years ago we installed my first morphine pump, and it's been a true blessing. Though my OxyContin dosages are at 160 mg and I also take OxyIR for breakthrough pain throughout the day, it's the pump that keeps my pain at levels so I can still have a little bit of normal life.
5 years ago the RSD spread over to the right leg and has now done around 80% of the damage it took 12 years to make out of the left leg. Then 1 1/2 years ago I went septic bodywide and wow was I infected. Two days later while I had 5 IV's trying to battle the infection, a blood clot hit my lungs. Oops, did I leave out the fact that I've also had a bit of a run with blood clots for the last 5 years or so? Guess the guy upstairs decided to give me one more shot at getting it right, but when I finally did get out of the hospital, the doctors said that both legs had to be amputated above the knee A.S.A.P. Let me tell you, it's hard making yourself chop off body parts.
The day before surgery, I decided I coul only handle one radical pedicure at a time so I let them take the left leg since the damage was a bit higher. They agreed, but only if I'd do the right leg later. So far I haven't gotten around to later even though my right leg is black and nacrotic almost to the knee and the actual tissue damage is above the knee. Meanwhile, just before I was to get snipped, my pump battery passed away. The timing really was crummy!
A few weeks after I became a shorter man, we got a newer, better, fancier model installed and wow was I thankful when they turned me on. I'll take anything I can get these days.
Do I understand pain, you're darn right. Do I care about others like me, more than you'll know. Am I here to help if I can, in any way I can. So that about say's it all. Have a good one, Bob.
After an accident in 1997 crushed the nerves in my pelvis, halfway down the calf and at the fibular head (knee), my left leg slowly started to turn color from the foot up, along with swelling and temp change. Within 2 weeks I was diagnosed with RSD. Within 6 months, I had purple, red and some black area's almost to the knee area. By 1999 I landed in a wheelchair and started a life taking narcotics all the time.
In 2004 I got an Intrathecal morphine pump, and I just got it replaced around a year ago, so now I'm on my 2nd model.
5 years ago the RSD spread to my right leg and has done around 80% of the damage it did to my left leg in half the time.
1 1/2 years ago I went septic, and the infection did go body-wide. After 2 days in the hospital I then had a clot in my lungs. Both should have killed me, but this time I got lucky. Meanwhile I've been battling blood clots for the last 4 years.
Last fall the doctor's decided I needed to have both legs amputated above the knee's, but I decided I could only handle one at a time, so I went with the left leg since that one is a little worse off. The right leg is now black all the way to the knee.
I haven't slept in a bed for over 12 years and have instead accepting the fact that I can only sleep in a chair upright. Since I'm in RSD Phase III, it's still progressing, but I refuse to go on a pity party because those who do, party alone. Thanks to a wife of 27 years and great family and friend support, I'm only half nuts half the time.
Guess that about say's it all. Bob.