Thanks so much for your kind words. Yes, the same surgeon performed all surgeries. Of course, one could discuss malpractice, but I guess I just don't want to go there and relive all of this: I just want to be in a better place. To be able to accept that my life is altered, but that there are still great times ahead. I watched the Oscars last night with my best friend, and I had a wonderful time. These are my good times and I need to tell myself that I must relish them.
I wish I would have done what you are doing: refusing to have further surgeries. In fact, my first was a microdiscectomy (sp?), and it was fabulous for the first 6 days, then I stupidly lifted a heavy mattress. I felt a terrible tear, and then excruciating pain. My surgeon did another MRI and said I had a collapsed disc and that surgery was imperative.
After the surgery, I woke up with a very weak right leg, with a lot of pain, and a complete numbness in my right foot which is always present, even when I am not in pain.
After constant complaining, he did another MRI to remove the scar tissue, just as you were mentioning. After not improving, they found that my hardware was infected, so went in and removed it. I have been in pain pretty much all the time since then. The oxycontin does help with the pain, but of course the side effects, particularly constipation, are really terrible. At this point, I must be addicted to the stuff as I have been taking it for 5 months.
I DO have an excellent pain specialist, and just last Friday I had the trial implant put in (neuro stimulator?). It seems to be helping, and I talk with him tomorrow to see if we can put it in permanently. The trial thing is very cumbersome, but it really does seem to provide significant relief. Do you have one?
Your instincts about not having further surgery are true and correct. Almost everyone I have talked to who has had multiiple surgeries say that they get worse with each one.
Thank you so much for caring and taking the time to communicate with me.