My HW family, Thank YOU! (I'm sorry this is so long)
First of all, I realize fully that I will probably be in pain the rest of my life. The big question is what quality of life can I lead? I believe we are all in pain all the time, but apparently those of you who are using a medication that allows the use of a BT medication seem to be doing better than those who don't. (me) At any rate, I said at the onset that I know from you all that my PM group is not helping me like they could or should. That is horribly apparent. I guess I'll try to answer questions and comments from the first one on down. Mikel my brother, thank you for letting me know I'm not a weirdo/mutant! I do feel that way sometimes. Tabitha, I'm so blessed to have been some kind of help to you because you have been that to me. Also, you've been hurting, but not as much at times which is a real blessing. I see that you too are on a daily med then a break-through to help with the pain. Also I had found another PM Clinic, but after a long drawn out thing, they wouldn't accept my insurance. I have been trying to work out how to get into another pm clinic without causing issues in case I have to stay where I am for whatever reason. And just to let all of you know I am going to keep working on finding a new pm clinic and doctor. As I type this, I get angry that this doctor hasn't addressed me and my pain with more compassion and concern. Yes Tabitha, my bp has been high as my pain is up of course. I thought about
going to the E.R. this morning as I have been racked with pain. Muscle spasms so intense that I had to wake my husband to help me get to the restroom at 3 am. I didn’t go to the e.r. because the pain was so intense that I didn’t think I could stand the car trip. Retiredmom…thank you for letting me vent, cry and feel; I need that. My pain is mostly the same all the time. I have woken up the house screaming out in pain on those rare occasions that I am able to sleep. Yes, I get that! Also Skeye, I’ve been UA’d at the pm clinic and had very little opiates in my system! I had no idea why so my hubby bought several tests for me to test myself. Invariably, my opiate level was very low! I find that extremely odd. This oxycodone is helping slightly more than the Lortab, but only slightly. I will try not to give up and to instead keep going until I find someone who is willing to listen to me! I too vomit and pass out when the pain is too much Dani! Again, I’m glad to know I’m not the only one! Your *huggs* are so kind and soft. Thank you. White Beard, there was kind of an air of protection towards me in your post and I could tell through your writing that you truly mean that I am not alone! I really need that, the support! Stella, wow! I can’t even imagine being at a 2-5! But that is my goal!! I appreciate you telling me about
different types of pain and the levels of pain you go through. Jag, if I had one clue as to why they won’t put me on an extended release med, I’d maybe have a clue about
the pain management clinic I’m in. On my last visit 3 weeks ago, I specifically asked for an extended release and the quick reply was, “No!” I am terribly allergic to Lyrica! My eyes begin going in different directions and a rash that was maddening broke out all over me. Neurontin just didn’t work. I go back to the pm clinic on the 23rd of this month. I can tell you for sure that I am going in mentally armed against the intimidation I feel every time I walk into that clinic! Each of you has given me a piece of yourself to carry in my heart that day. Thank you! You are an amazing group!! Mikel, thank you so much for encouraging me to make the step to write this post.
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.