Thank you for the warm welcome!!! Let me start off by saying that I don't expect answers, but a place I can come to for camaraderie and support and maybe ways on how to better deal with my situation.
Well, to start, when I was 16 I was diagnosed with a genetic disorder called dystonia. This disorder involves involuntary contractions of your voluntary muscles. Sometimes the muscle spasms can be on a macro scale, sometimes they can be on a micro scale, and more often than not, in my case they are on a micro level which constantly has my body on the go and can be a great source of fatigue. Then there are those occasions, depending on how much stress I have had to deal with at any given amount of time, when the spasms go into macro phase and my whole body is jumping around. For treatment, I take the generic for Topamax which normally treats seizures. Two off label uses for it are migraines and dystonia - I have both of these... killing two birds with one stone, and I get to lose a few lbs with it. The one thing I can be grateful for is that I look perfectly normal and nobody could tell that I am disabled with this disorder and have a number of physical limitations.
In May 2004, I think, I can't remember the year anymore, I was the passenger in a not so bad car accident. However, this car accident left me with a chronic back injury. From this accident I was left with an annular tear and bulging discs in my lower lumbar region, all the way down to S1. The discs were completely devoid of spinal fluid. No amounts of physical therapy could make this injury get better. I am not able to lift more than 10 lbs and I have to make sure that I keep my core strengthened at all times, which is very difficult to do when you have so many other conflicting limitations. So, leave it to say, my back hurts a lot.
In July 2009, I was rear-ended AGAIN!, compounding my previous chronic injury. I now have a second annular tear, the bulging discs are bulging out further, and I now officially have degenerative disc disease. Again, try to take care of myself as much as possible by going to the gym and staying fit, but having known limitations makes it very difficult.
On the side, I have several other conditions which I don't much care about anymore as they are medically under control and managed every 6 months. I have hyperinsulinemia, which is the opposite of diabetes, however I take a diabetic medication to fix the problem. Along with that I have polycystic ovarian syndrome, and hypothyroidism.
Then about the time I moved up to Santa Barbara with my fiance, I started having these bouts of random pain.... pain in my legs, pain in my arms, pain almost everywhere. I couldn't associate it to one particular place. It would last for about a week to two weeks and go away. It comes and goes off an on and sets me back every time it does.
The newest development has been major chest pain. I developed that in January. I was having an endoscopy/colonoscopy done to clear me of my ulcers and that week I had developed this major chest pain on the left side. It wasn't heart attack status. This pain persisted for at least two weeks. I asked my gastroenterologist if it could be related to my ulcers. When she told me my ulcers were gone and really felt that it was stress related, I was stunned. By the time I got back home from Orange County, I was still have the chest pain, tums weren't working, and I didn't feel like I was stressing over anything at the time to warrant such severe chest pain that I went to a GP here in Santa Barbara. She did all the usual tests to clear me of heart problems. I am A OK.
Randomly, the chest pain went away... then, for the last two weeks my calves have been been so painful and I have had random sore spots near the shin. My knees have been impacted as well and have been swelling. In order to sleep, I have to rest with them elevated. Yesterday I was sitting at work reading out loud to the girl I work with and all of a sudden I get this major, sharp chest pain that makes me nauseous and all fuzzy in the head like I am going to black out. I felt like the calf pain and the chest pain together warranted another visit to the doctor. I go to the same GP here and again all my vitals are good except for me having a low grade temperature and the chills like no other. All she does is clear me for being a medical emergency and pretty much takes the attitude that I need to take up this issue with my doctors back home. I told my fiance and my mother that if I die tomorrow to report this doctor for not taking the time to investigate the issue further. This doctor said some pretty nasty stuff in addition to her general comment that really upset me, but I don't want to muddy the waters here.
So, I am home now with my calves just aching at the moment, and an off an on ache in my chest and I can't get home to Orange County any time soon to get to a REAL doctor.
Thanks for reading! :)
~ Burdensome Love