Hello my dear friends!! how are you all doing? My laptop is back so I will be able to join in on the conversations. i need an update on everyone!!
Myself, I came off my second cycle of ketamine infusion March 16. The first week of March I was doing so great. My pain was 7.5/10. That is good for me. But the last week and a half my headache is back to 9 and 10. Don't know why. My next cycle will start April 5. I hope things can get back on track. I have been up and about but the last few days I am not feeling great with the increase in pain. Also I am not sleeping great, having trouble voiding, awaiting a urology consult as I might need to do cathetherizations, terribly dry mouth, going to look at getting some biotine products which help in saliva production. I will be talking to my dr. that is doing the infusions about seeing if I can decrease my Oxycodone as I am sure this is the major factor in all these problems. i feel like my body is just a terrible mess. I am certainly starting to feel down again! Going to get some bloodwork done on Monday to check liver functions and other.
I sure have missed you all!! hope you don't mind if I lean on your shoulders for a bit!!
Chronic, severe and continuous bilateral temporal headaches since April 2000.
Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada