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Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 3/29/2010 1:44 AM (GMT -6)   
    Dear Family,
    Bright and Sunny here in New Mexico. It is time to clean the patio and bring out the out door play items and patio furnature. With Easter only a week away there is much to be done.
     This week should be slower than most doctor wise. I have met some of the new doctors and they seem nice. The rheumatologist in particular seems very detail oriented. I hope to hear back from him this week. He wanted to meet with my other doctors and have new xrays before moving forward.
     My bumblebees have alot going on at school with preformances, parent teacher confrences, feild tripps. But, thankfully, they will only be in school a few days and have half a week for Good friday / Easter vacation. What is even better? My husband will be home for 4 days aswell. It will be nice to have everyone home for mini vacations :-)  Now the only thing left is to decide on Ham or turkey for holiday feast.
     So, that is what is going on here. What is going on with You? How are You feeling? What are your planns for the week?



Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 3/29/2010 2:19 AM (GMT -6)   
Some of you may remember that my cousin had surgery for breast cancer a little over a week ago. She is doing great. They removed 2 lumps, and 2 lymph nodes. The nodes were clear, and her cancer is Stage 1 - GREAT news! The downside is that she had a breast reduction (on both breasts) at the same time, which turned out to be a good thing as it helped them to find that she had precancerous cells in both breasts. In about a month she will start 4 months of chemotherapy; they said about 6 treatments, and then she'll have radiation. She'll also be on tamoxifen for 5 years. But she is healing nicely, her spirits are good, and we all plan on spending Easter at her daughter's house.

For whatever reason, I am very, very tired these past couple of weeks. I know some of it has been concern over my cousin, but it just doesn't seem to go away. I want to stay in bed a lot, and mostly because I'm so cold that's where I can get warm. Doing too much napping, and not getting a lot of other things done.

We had a sprinkling of snow a couple of days ago, and may have a bit tomorrow, but then it may warm into the 60's later this week. Finally! And I am going to look for a hyacinth plant as I love the aroma in the house.


Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 3/29/2010 2:46 AM (GMT -6)   
Good Morning and Happy Monday!

As you can see from the time of this posting, I am still dealing with insomnia, on top of all my other issues. I'm feeling pretty fortunate that my LTD has kicked in, so I can focus on rest when needed, and trying to find ways of feeling better while I wait for an appointment with the Orthopedic surgeon. My pelvic pain has been less aggravating lately, which is a blessing...I really believe my doctor and I have found the right combination of medications to manage my overall pain. I've been in a Fibro flair all weekend, but it's seems to be easing off now...what a relief! The only other issue is my constant hip pain from the FAI (femoralacetabular impingement). I hope the appointment for the surgeon comes thru soon....because I know it's going to take forever for surgery to happen after that.

I'm going to an AquaFit class tonight with a girlfriend and I'm really looking forward to that. I'll do what I can, and if I can keep up, great. If not...no worries...I'll just do my best. We're hoping to do this weekly, so I went and bought a new bathing suit this weekend to inspire me (and it wasn't the usual ordeal shopping this time, since I've lost about 35 lbs in the last 6 months!)

Other than that, life is good here. My daughter starts classes tomorrow to earn her Legal Assistant diploma and my son is taking on an acting manager role at the retail store he works at for the next two weeks...he's currently the Assistant Mgr, and should have his own store by this fall to manage.

Hubby is finishing a paper for his class (he's working on a Bachelor of Theology degree) and I have website work to complete this week, so we're all busy and doing well overall. Even the cat...she got a new catnip mouse!

We're looking forward to lots of sunshine this week...and I hope it's beautiful wherever YOU are! Here's to a really good week in all ways for each of us!

Big hugs,
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily

Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 3/29/2010 5:51 AM (GMT -6)   

The Ohio weather is finally starting to turn into spring and hopefully in the next few weeks we should be past the fear of frost and some flower planting should start.  Visiting the garden center to buy plants for my pots is one of my favorite things. 

We have a small apartment attached to our garage at the back of our lot.  It has a bedroom, livingroom & bath but no kitchen so we've been working on that.  Have purchased a 20" range, cabinets & small fridge so far.  My husband got the plumbing completed Saturday for the kitchen sink and added plumbing for a stackable washer & dryer.  We want to put our house on the market this summer & adding a kitchen in the apartment should be a good selling point.  Our house could easily be made into a duplex so we will be pushing it as an investment property with the potential for 3 separate rentals.

Health wise nothing has changed.  I'm still waiting on the rf in the lumbar spine.  I got a call from the PM office stating that I'd have to sign a waiver for payment since a pre-cert hadn't been completed.  I told them I didn't want to proceed without one because I couldn't afford the surprise of a $2000 bill.  She said it would only be about $850 like it was nothing.  I told her that even that was too much and we would hope the pre-cert was completed by my April 12th appt.

That's about it for me.

DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3

Veteran Member

Date Joined Dec 2008
Total Posts : 773
   Posted 3/29/2010 8:17 AM (GMT -6)   

Good Morning Friends,

The weather here in Phoenix is beyond beautiful, we are at the end of March and still have not had to turn on our A/C's.  Temps have been between 72-80 which is perfect.  Anything below 99 is fabuloustongue

Me, I have been so tired this past week and the pain level high, all of this a result of the reception Party I held for my daughters recent marriage last weekend, its okay though, it was definitely worth it.

Have been busy trying to get my taxes ready for the Accountant, last July my computer crashed and with it went my Quicken program which holds my husbands Business and our Personal information.  When we re installed Quicken on my new computer, all of my common responses were GONE!  I have procrastinated sitting down and redoing all of 2009's entries, so yup here I am 2 days before everything has to be at the accountants still catching up.  Think of the thing that you hate to do most and you will know what this chore feels like to me! YUK!

We are invited to my youngest daughters for Easter, which I am very grateful for.....both my girls are grown so its time for them to help Mom and start hosting the Holiday's.  They are both excellent cooks so I am looking forward to her style of entertaining.

Thats about it for me, whats going on in your world?


Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 3/29/2010 11:39 AM (GMT -6)   
Hi all...

It's cold and rainy in Northern California... supposed to be this way all week and through the weekend. I actually like this weather...but know the boys will be climbing the walls towards the end of the week.

Busy, busy week w/ doctor appointments. open House for the boys on Wednesday night. Husband gone from today through Friday...which makes for a "harder than normal" week. Looking forward to the weekend....Easter egg hunt on Sat for the kids; Easter/church; BBQ w/ my family and my parents; etc. Also, "spring break" is next week for the kids....so it'll be nice to have a week off!

--Dani...thanks for starting this thread :)

--PaLady...I'm glad your cousin is doing better - that's great news. But I'm sorry to hear how tired you've been...

Everybody else...I hope you have a good week!!

Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 3/29/2010 1:33 PM (GMT -6)   
Georgia is full of sunshine and flowers this week. The windows are open and the air is fresh and clean.

Yesterday's rain left yellow rings around everything....so we can really see that the bees are doing their jobs and helping the flowers and fruit trees grow. The cherry blossoms are beautiful, as are the pears and the peaches.

This weekend my husband planted our small garden and cleaned the blueberry orchard. We're just waiting for the new pecan trees to start with the fresh growth so we can enjoy them too.

It's looking like a really wonderful weather week ahead!
Formerly PrayingForRealRelief...

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 3/29/2010 7:35 PM (GMT -6)   
Southern California has had a "Santa Ana condition" over the weekend that is continuing through today....the highs here have been in the mid-to-high 80s. It is gorgeous out, of course, but Santa Ana winds cause the humidity to be extremely low (sometimes single digits), and my nasal passages always react badly. I'm looking forward to the predicted drop in temperature and even possible rain predicted for later this week!

I was born in Northern CA.....maybe that's why I like rain and fog so much....??

We don't have any special plans for Easter....we will have a nice dinner by ourselves on Easter Sunday no doubt. My family have all moved away from this area: my mother is in Oregon, one daughter and her husband and children are in Idaho, another daughter and my only son in Northern CA....I miss them!! I can't travel as much as I used to!
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 3/30/2010 10:25 AM (GMT -6)   
Hey Miss Dani girl !! Bright and early is right 1:44 am ? Couldn't sleep Sweet Dani ? I'm sorry if that was the case I hate to think of you having difficulty getting your rest .But as always its wonderful to hear from you in any fashion , I'm so glad your hubby and the adorable bumblebees will have some great quality time with their mommy !Have fun Dani girl , enjoy your wonderful family on Easter .Do your bumblebees do a easter egg hunt ?  love ya Mikel
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines -   Celelbrex ,viracept,truvada, lasix .    '                                                                                                                         

Veteran Member

Date Joined Jun 2007
Total Posts : 702
   Posted 3/30/2010 1:33 PM (GMT -6)   
I am a littl e late as it tuesday.

better late than never!!!

I am hanging in there. I got a message from a m]family member who is about to graduate from massage school so that was nice. I am anxiously awaiting an appointment next tuesday with a new lyme doctor. It is a 2-3 hour drive each way. not looking forward to that because I will be alone.

I hope my body holds up for the drive. There is a friend half way there and I may stop on the way home and spend the night and finish the trip the next day. thats the plan anyway.
see my pain managment doc tomorrow. I suppose for more of the same. dont expect anything new. I have been ultra tired and sore. If I have one minute to spare I am in in bed. Not a great way to live.

I have been doing aquatherapy for afew weeks now. It has been helpful..
please keep your finers crossed for me that this doc will be good to me.

I hope every one has a great week.
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 3/31/2010 2:43 PM (GMT -6)   
I am late posting to this one but better late than never. I like the idea of this post and think we should do it everyone once in a while (or maybe we do and I have not noticed). It's a chance to catch up with everyone.

This week i have felt so zombie-like. I just can't stay away and my headache has been 9-10 for two weeks. Not fun. The next ketamine cycle begins April 5.

For fun we are leaving tomorrow am for Killington Vermont so the guys can ski and I will rest and relax. can't wait.

Hope everyone has a lovely weekend with a little less pain. Enjoy the sunshine.

Do you live near Vermont??

 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
 Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada

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