I am on Baclofen 30mg every eight hours, to treat them and have been on Baclofen for quite a few years now, It normally does very well and it really has been a Godsend for me! But every once in a while, ( and the time frame varies) I will start having major problems with them. It is just like the medication has quit working altogether! I start getting them in all the different muscles, and sometimes this will last for just a few days and other times for several weeks, This has been going on for 3 or 4 weeks now! and I get them not only in my legs and feet, but in both my arms, and my hands! and in my back and in my neck! The other night I had it in my jaw, and it was from my cheek down my neck, at first I thought I was stroking out! as it affected my mouth and my throat! It only lasted a minute or two but it did scared the "heck" out of me! After that and a few other wierd things, I finally picked out a neurologist and gave my PM Doc the name and he is writing a letter and setting up an appoitment with him for me!. My pain Doc told me he can not increase the Baclofen because I am on the max dose for it! Anyway, this has been an ongoing problem, and I also have other symptoms that go with it! Usually when it does go away I am often left with some type of deficit! The Charley Horses and spasms are a real SOB! I have found it rather difficult and some what unsettling to be alone and have them! Not that the ex was much help when I had them before, but it does change a little how I have to deal with them now!, I have been having trouble with spasms in my lower rib cage, and in my back, anyway there have been a few times that when I hook the hose up to my mask ( I have sleep Apnea and I am on supplemental O2 and VPAP ASV at night when I sleep) I have had spasms in my bottom ribs and my back and I can not breath! I rip off the mask and it does not help, I try sitting up, and still nothing, I am ready to panic, so I jump out of bed and stand up and then I start gasping or air! I am trembling and sweaty! I have not had this happen before and now the other night was the forth time in the last week and a half!It is hard to explain what it feels like, kind of like being squeezed and not being able to get air in??? It is painful and frightening! Hopefully I will be getting an appointment with this Neurologist soon! ( I am stuborn I will not go to the ER! I have had two bad experiences with the ER and I will never go back!)
S.E. and Chart I thank you for the concern, I have put off gettin a neurlogist for quite a long time now, and all my Doctors have been telling me I need to be under the care of one! But to date, I have never really ever had one that has helped me, nor have I ever had one that I liked or trusted! Hope run eternal I guess, so who knows, maybe this one will be able to help me!
Anyway it can not be all that bad! After all I am still here!
Again Thanks for the Concern!