I too would like to welcome you to Healing Well's chronic pain forum. I am so sorry to hear what is going on with you and the RSD as I know it. Now, they have given it a fancier longer name, but it still is the same rotten disease. I am very glad you found this forum and the fact that you felt better writing it out, is totally awesome. It took a lot of courage for you to come here and post as you did. You are one tough cookie, lol. You just have to keep hanging in there. I know, you are so tired of being told that and I do understand. I remember all so well when RSD was first being diagnosed and back then insurance company's did not pay for medical treatment because they said it was not a medical condition and it was not recongnized by the good ole AMA; and all medical treatment was considered experimental!!!! No doubt you do feel as if you have been to hell and back many times with RSD.
I am no expert at it but I sure am familiar with it. None of us are drs here, but we all have a story to tell and one thing we understand is CP. I worked for attys all my life doing personal injury, worker's comp, med-mal and a few others. This is where I got my knowledge in the medical field. Finding a dr that knows how to treat RSD is like looking for a needle in the haystack but they are out there. My experience with RSD always fell in the realm of a good pain mgt dr. I live in Tx in a very large city and it was PM drs that dx'd and treated people with RSD. MD's & DO's did not have a clue. I do not know what meds you take, or have taken in the past, but one med used quite frequently even today is called Amitriptilline. I believe and I am rusty on this call, but that may be the generic for Elavil. Look it up on Drugs. com.. This is a drug that must be started out on at a low dose and slowly titrated up, as it is a drug that builds up in your system over time. It is used off label for many different things. My son was on it for migraines. I saw many clients get some relief once they were titrated to the correct doseage for them. it also helped with their depression too. CP and depression go hand in hand believe me. If it were not for my chill I am sure I would be single and my dogs would have packed their bags and left too. Hell, I wanted to leave , lol. I was trying to get away from me, lol.
You are in a real catch 22 with no insurance and no money to pay big bucks to drs. Is there a teaching hospital any where around you? Most folks that end up at a teaching hospital are ones that have ran the gambit of dr to dr trying to get help. There is wonderful care to be had at many of these places. At teaching hospitals you don't have the big egos to put up with or the God syndrome that some drs get. Your question about stronger medication, I can only tell you that drs do not like to give out pain medication to anyone on a long term basis. Their idea of long term is two weeks, too. Narcotics are pretty much out the window with them too. The only drs you will find willing to rx pain meds on a regular basis is a pain mgt dr. We have a few on here that their PCP is willing to rx them pain meds, those drs are far & few in between. Not what you wanted to hear, but its true. The big war on drugs has had an negative effect and impact for people suffering with CP.
PaLady gave you some excellent info on applying for Medicaid and SSD. No one wants to get on any of these programs ok, we would all much rather be well, trying to scratch out a decent living and getting on with life as we once knew it. But, sometimes that is just not in the cards for some of us. So, before you totally kick dirt on these ideas do some online searching and reading. SSA.gov has a good section about disability and applying for it, please check into this. It is not saying you have to be on it permanently. I never figured being disabled at the age of 49. I would have laughed in someone's face had they told me that. Boy, little did I know.
I need to stop here for now, I am in severe pain tonight for being real stupid today. I am waiting on my pain meds to kick in so I can hobble to the shower. You take care and please keep us posted on how you are doing. When you feel like venting come here and vent away, we do understand.
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.