Hello my dear friends.
Welll I have finished the first week of my ketamine infuision (for those who don't know, I have constant headaches, have had for ten years, no one can help. and a dr. at my hospital, I am a nurse, is trying to help me with ketamine infusion cycles which can break the pain cycle for those in chronic pain)and this is my third cycle. I has been way different than the other two cycles in that it did not affect my mobility so much as I was able to get to the bathroom with my cain, but I was super out of it, drowsy, never able to open my eyes, always sleeping and the pain in my headaches was horrible. So horrible I was afraid to move, to talk, to cry and oh my have I dried bucket this week. Anyways I guess i got thru the rough part cause I am still here and I have my dear friend Micheal who kept calling me and telling me to hang in there just a little bit more each day because he knew if I got past the first week of the infusion then my body starts to get used to the medication and it isn't as rough any more. So I listened to him and he listened to my cries for help and desperation and I was scared and I did not want to live. He kept me going. Michael you are one special person and I know that somehow somewhere we will me each other in this day and lifetime.
So Monday was the start of a better day. although be it difficult because I had a funeral to go to for a young mother, I knew I had to be there and I believe God carried me today and stayed with me each minute of today beause how else could I have done this after spending one whole week in bed wishing to die. I have thanked the Lord a million times today.
Today I need to go for some testing for my bladder parts becuase due to all the narcotics i have taken for my chronic pain i am having to strain to void now and that is not a good thing. I will most likely have to do intermittant catheterization.
So I'll leave you with all that info for now but I will be back because it is all of you here at HW that keep me going. Much love.
I pray that many of you can have a low pain day and that you have some sunshine where you live. And if so try to get outside for at least twenty mintutes as it will make you feel soooooo goood.
Love and hugs
Chronic, severe and continuous bilateral temporal headaches since April 2000.
Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada