Thank you for all of the information. I'm limited as to what and how much I can do in a period of time because I have no insurance or medical assistance and am paying for everything out of pocket. Surgery is not an option for me because I can not afford it. I have also heard that burning off endometrial tissue can do more harm than good. Right now I'm faced with the problem of finding a doctor who is willing to listen to me and I'm finding that the best doctors who really care and are interested in helping their patients only take patients who have medical insurance. I didn't know they could do that, but it's true.
My last resort is a referral to pain management that I got when i first started seeing the MD who told me that the treatment was the same no matter what the cause... at least she did that much for me. I thought that pain management was nothing but drugs so I was trying to avoid that at all costs. I had to send my referral to the only doctor in my town who would accept a self-pay patient and cost less than $1,000 per visit. I make enough money to not qualify for any government or state assistance, but surely not enough to afford that kind of treatment. I also have now been branded with a pre-existing condition so that now that I can actually afford some insurance, it wouldn't do me any good if i did purchase it.
I'm waiting to go to pain management to see if they can refer me to a good gynecologist with perhaps some experience with my situation, or to see if the pain management clinic might be able to do an ultrasound at their location or save me some money by having the lab bill through the PM clinic. Otherwise an ultrasound would be around $300. I have had one ultrasound but that was before I got my IUD and a year before I started having pain. I was told that there was "nothing abnormal" at that time. I haven't had a doctor tell me that a hysterectomy was even an option for me. I'm 26 and if I were to make that decision I'm sure I'd have a hard time finding a doctor who would even do that for a person my age. I've just concluded that is probably the only thing that would completely take my pain away. It's possible that I could find another treatment and that's what I'm trying to do.
What I need to find is something that can just help me get by until I can find an insurance company that will take me, and then I will have to wait out the period of time where they will not cover anything having to do with my chronic pain. Right now I don't have much of a diagnosis and haven't been treated much other than physical therapy, but I am afraid that if I actually do go to pain management it will look worse to an insurance company and I might be denied coverage altogether. I signed up for americans 4 healthcare, which is a discount program. It is $60 per month and provides a 40 to 60 percent discount on all medical, hospital, and pharmacy costs. I really hope that will help me and that it is not a scam.
I also need to find a good gynecologist. I was heartbroken when my mother's OB/GYN, the man who delivered me and my sisters, retired. I have been seeing midwives since then because I feel like they listen and spend more time with their patients, but sadly they're not as knowledgable as a gynecologist. It's so hard to find a good doctor.
My body does not deal well with hormones. They make me very irritable, unable to deal with stress, and depressed. I feel like I don't have many more options when it comes to birth control because my boyfriend is unable to tolerate condoms, and my uterus is retroverted so that changes the position of my cervix and makes me unable to use cervical caps, the nuva ring, or a diaphram. I thought that the Mirena IUD was the answer to my prayers and was wonderful for a year, but then this pain started and I had it removed.
The issue IS definitely with my sacrum. It always tilts forward to the right. I think that this has to have something to do with my internal organs, because there is a tendon that attaches from the sacrum to the uterus. I have been through months and months of (painful) physical therapy and the pain improves for a month and comes back full force when I have a period, and then does not go away unless I go through more physical therapy. It is very strange. I have had doctors diagnose me with sacroiliac joint dysfunction, but if that were my problem then physical therapy would provide me with more permanent relief. Since the pain returns with my period, my physical therapist discharged me because she thinks she can't help me.
Again, thank you for taking the time to reply. You are right that this is a great group of people. I wish you guys were doctors! :)