We have connected before by email, remember me, my name is Suzane, I live in Ottawa, I have lived with your pain for ten years and was in the montreal area for treatments. Lets connect again as I have a lot of info i can share with you. Also i will be in montreal on saturday as I am doing a bus trip from my church and going to the oratory. I am going to be praying some hard when I get in there. Perhaps you can come there for the time that i am there. We are visiting another place too which i can talk to you about. Wouldn't it be great if we could meet.And you can come to Ottawa anytime to visit me.
I can feel your pain honey. I have been suffering immensely for ten years. You and I can share lots of info too.
But right now i need to get to bed. My dear and close friend Michael and I have been talking into the wee hours of the morning and now i must rest my weary body. My last three weeks have been horrible like never before. I pray for strength and courage to go on each day. My motto has been and always will be, "One day at a time"!!!
Hugs to all my friends here at HW!! I miss you all terribly and I hope I feel well enough to come back soon and post!!
Chronic, severe and continuous bilateral temporal headaches since April 2000.
Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada