I don't have it in my profile, but I do have TJM. Apparently it runs in my family and I don't have a "bad" case. My sister, however, has really bad TMJ and has had the surgery to correct it. She actually had to have her jaw broken and re-set when she was in high-school (30 years ago). She doesn't have too many problems now.
The rest of us still have the TMJ, but are able to control the worst of the problems by managing the clinching. I have had my dentist make the "grinding covers" for my teeth and I use them when I'm having a flare. Otherwise, I take controlled release xanax to help me not clinch. It also works for chronic muscle spams, anxiety, and the vertigo. Kind of kills several birds with one stone.
I can't comment on your situation because it is so severe. I can only offer support and encouragement. Perhaps appliances can help, but only a true specialist can help with this one.
I don't know your medical system there, but I hope you are able to find the best person to treat you for this problem. I'm not sure of the speciality you would use.
DDD, CPS, TLIF L5-S1 2009, FIBRO, VERTIGO, MIGRAINES, GERD, SLEEP DISORDER, NISSEN FUNDOPLICATION (failed), DEPRESSION, EXTREME ANXIETY DISORDER, OCPD, PTSD, CHRONIC MUSCLE SPASMS, HGH DEFICIENCY, VIT D DEFICIENCY, CARPLE TUNNEL SYNDROME, BLOOD SUGAR ISSUES, THYROID CYSTS, AND SERIOUS MOOD SWINGS :)