Crazy Daze, well, I am going to try this one more time, lol. I just lost an entire response to you and have no idea what button I hit that caused it either, story of my life., lol. Wow, I read your story and boy do you have one to tell. You really do have a plate full and no wonder you feel as you do. I totally understand the family thing. I found it much easier for me to not discuss my medical issues with anyone in my family. It is not something I recommend to everyone else. I know alot of them have the very best intentions but I have found only another person suffering with CP can relate to the every day challenges. It has just worked for me and I don't have the grief anymore to put up with or deal with. For some reason many times families think we are suppose to just sit down in a chair and let the world go by. Well, that doesn't get laundry done, the house cleaned, the yard mowed, shopping done none of that stuff. Since I don't have a money tree growing in my backyard these things fall on me to take care or they don't get done, its real simple. I do it all based on how I feel that day, it is not like it use to be here, not by a long shot. These activities always lay me up for a day or so but thats life as I know it. Mrs. Clean moved south on me a long time ago, have not heard from her since, lol. So far the neighbors have not had to call the police because of us streaking because of no clean clothes to wear, it gets done the same as the house.
As you have seen in my signature line I have the Intrathecal Pain Pump. My pain has been under the best control this past year for the first time since the pump was put in back in June of 05. My former PM dr stopped practicing PM and referred 45 of us pump patients to a retired neurosurgeon who is a brain with these pumps. He has no clue what a favor he did for us 45 people. It is a slow process of rebuilding your life and I am still not there and figure it will take many more years. All we can do is take it one day at a time.
Since your trial with the SCD was a bust what is the plan for you now? Do you have a lot nerve pain, which I am assuning you do since you did the trial. I know pain medications have little effect on nerve pain and most need meds that deal with nerve pain. Something I will throw out and you probably already know depression and CP go hand in hand. If it were not for me being on medication for the depression I am really not sure where I would be now. For some it will also decrease their pain a tad. If you are not on something you may to consider asking your PCP to try you on one. It can be a hit and miss on which one will work, there many different ones out there.
I have suffered with low back problems for over twenty years and then of course the neck has to kick in. I have tolerance issues when it comes to medications and we ran out of pain medication options for me and that is how I ended up with the pain pump. But, I am not limited to just having problems with pain meds its everything. Drs just scratch their heads and tell me I am a challenge.
Please update us on where you are at now. Mods have no set time to be on the forum. We volunteer and we do not have a schedule. We are here as time allows us and health issues. I am here sometimes in the wee hours reading when I can't sleep, I just never know. Some of the other members have sleep issues too and they are often stop by.
Again, welcome aboard.
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.