I just joined and thought I'd introduce myself a little bit. I used to be a dancer; ballet, jazz, lyrical, and modern. In 2007 i injuried my shoulder, but x-rays and MRIs showed nothing. I tried physical therapy, medications, and many other things, none helped. The only one that relieved my pain temporarily was trigger point therapy. I've been living with this pain since. This pain I could have lived with for the rest of my life, but in the summer of 2009 I fell and injuried what seemed to be my tailbone or S.I. joint. Again, i got xrays, MRIs, and bloodwork. It all showed nothing. I went to physical therapy again for 2 months and became worse. I tried aqua therapy, a different pt place, acupuncture, every family of drug, and saw countless doctors. As time went on my pain spread up my back and down my leg. From there the pain traveled to my other leg, my feet, and eventually encompassed my entire body. I get deep aches, sharp pains, throbbing, tingeling, numbness, cramping, and swelling in my entire body. My feet started turning purple and freezing. Mornings became increasingly diffficult to make my legs function. They shook and tremmorred. One Saturday I was working on homework and my hands spazed and started shaking. I was unable to walk and my entire body was shaking. My parents took me to Childrens Hospital, and there they did a couple more tests, but most importantly they diagnoised me with reflex neurovascular dystrophy, RND. It is similar to RSD, but not quite the same. No medications help, and not very much research has been done about it. I am still coping with all of this, still in pain, and unable to go to school. On top of the RND docotors think something else may be wrong, but are unsure as to what it is. I am going to a program for kids with RND at the Children's Institute of Pittsburgh, and plan on going inpatient there. In addition to all this even before the pain I had depression, and the pain is not helping with my depression. I don't know if anyone can relate, but it'd be nice to hear some stories similar to mine.
-15 year old looking for some hope