Hey everyone, am I in the right place?

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New Member

Date Joined Apr 2010
Total Posts : 3
   Posted 4/22/2010 10:25 AM (GMT -6)   
Hey everyone,
I just joined and thought I'd introduce myself a little bit.  I used to be a dancer; ballet, jazz, lyrical, and modern. In 2007 i injuried my shoulder, but x-rays and MRIs showed nothing. I tried physical therapy, medications, and many other things, none helped. The only one that relieved my pain temporarily was trigger point therapy. I've been living with this pain since. This pain I could have lived with for the rest of my life, but in the summer of 2009 I fell and injuried what seemed to be my tailbone or S.I. joint.  Again, i got xrays, MRIs, and bloodwork. It all showed nothing. I went to physical therapy again for 2 months and became worse. I tried aqua therapy, a different pt place, acupuncture, every family of drug, and saw countless doctors. As time went on my pain spread up my back and down my leg. From there the pain traveled to my other leg, my feet, and eventually encompassed my entire body.  I get deep aches, sharp pains, throbbing, tingeling, numbness, cramping, and swelling in my entire body. My feet started turning purple and freezing. Mornings became increasingly diffficult to make my legs function. They shook and tremmorred. One Saturday I was working on homework and my hands spazed and started shaking. I was unable to walk and my entire body was shaking. My parents took me to Childrens Hospital, and there they did a couple more tests, but most importantly they diagnoised me with reflex neurovascular dystrophy, RND. It is similar to RSD, but not quite the same. No medications help, and not very much research has been done about it. I am still coping with all of this, still in pain, and unable to go to school. On top of the RND docotors think something else may be wrong, but are unsure as to what it is. I am going to a program for kids with RND at the Children's Institute of Pittsburgh, and plan on going inpatient there. In addition to all this even before the pain I had depression, and the pain is not helping with my depression.  I don't know if anyone can relate, but it'd be nice to hear some stories similar to mine.
-15 year old looking for some hope

Veteran Member

Date Joined Sep 2009
Total Posts : 663
   Posted 4/22/2010 10:32 AM (GMT -6)   
Hi Student, I am so sorry to hear what you are having to deal with at such a young age! I am not familiar with RND but I am familiar with chronic pain. I think you will like it here as the members are so caring and helpful. Whether or not they know about your condition sometimes it just helps to talk to someone who is also in pain. I hope you stick around and get some help from here, the members and the moderators have so much info and they are wonderful to talk too. Take care hun and again welcome!
Gentle Hugs,
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Percocet for bt/pain, Flexeril as needed, Lopressor, Lexapro, Famotidine, and Promethazine as needed for nausea from migraines

Regular Member

Date Joined Jan 2010
Total Posts : 78
   Posted 4/22/2010 11:22 AM (GMT -6)   
turn Hi Student! I have never heard of RND. I suffer with RSD due to spinal cord surgery last Jan. I take Savella and Gabapentin (Neurotin). I am in my 3rd week of low pain level (2-3). I am sooo thankful! What is the difference beyween RND and RSD? My youngest son has RSD. All the research he and I have done seem to be that RSD affects mostly arms and legs. I'm so sorry you are suffering with this at such a tender young age! Take care and good luck with finding meds or other treatments that hopefully will help you. Donna yeah yeah

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 4/22/2010 11:57 AM (GMT -6)   
Hi Student,

I'm sorry that you have to join us because of pain. I know how hard it is to be in pain at such a young age when doctors are much less likely to take you seriously or offer you the treatment you need (I'm just a few years older than you -- graduating college). All I can say is don't give up. It took me years to find the right doctors & I think you'll hear a similar story from many others, regardless of age. I know that it's even harder when the doctors can't pinpoint what the problem is -- I'm in that boat too. I can't tell you how many professional conferences my case has been presented at now & yet no one has any answers for me. But try & stay positive. I know it sounds corny, but it helps.

You're absolutely right that depression and chronic pain go hand in hand. Each makes the other worse. I also suffer from depression related to my chronic pain. I think you'll find that many of us do. One important step in treating your pain is finding a good psychologist that you can talk to. There are even special psychologists out there that specialize in chronic pain. It is important to get your depression under control if you can.

You may also want to think about keeping a pain journal (you can find a link to a good one in the CP 101 thread). It is a good way to document your pain for both yourself and your physician & may come in handy when you are trying to explain just how much your pain effects your life.


Post Edited (skeye) : 4/22/2010 11:14:04 AM (GMT-6)

Veteran Member

Date Joined Apr 2010
Total Posts : 2261
   Posted 4/22/2010 1:50 PM (GMT -6)   
Hi Student.  I'm so sorry you're having to go thru so much pain at such a young age.  I don't know about your condition, but I do know about pain.  I wish you good luck in finding a treatment that helps your pain and your condition. 
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety

New Member

Date Joined Apr 2010
Total Posts : 3
   Posted 4/22/2010 2:52 PM (GMT -6)   
Thanks for your encouragement guys. And there is not a huge difference in RND and RSD. Some doctors use the term RND while others use RSD. RND can also mean that there is pain all over and not just in the one area. RND is typically found in kids and teens.

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 4/22/2010 3:12 PM (GMT -6)   
I wanted to says hello and welcome you, depression sure seems to be part of our live here with Chronic pain
and I wanted you to consider maybe looking into a pain management psychologist..I see one and it can help you
to focus better and maybe try some relaxing cd's for helping to get thru the night, getting thru the night
is sometimes very very hard...and the cd that helps me relax maybe you could give that a try...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 4/22/2010 5:42 PM (GMT -6)   
Hi Student,

I'm so sorry you have having problems and wish there was some way to help. I have no knowledge of what you are experiencing (except pain of course), but will be here if you need to vent or just to "talk". You are only a few years older than my daughter and I cannot imagine her going through what you are at that age.

I wish you all the best!
Retired Mom

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 4/24/2010 10:13 PM (GMT -6)   
Hi Student!

And Welcome to our CP family! I too am so sorry you are suffering, especially being so young. I have grandchildren older and younger than you and I'm sure it's also devistating for those who love you.

I too live with constant pain but mine is from something called fibromyalgia. It's a condition where all of your muscles in the body ache, feel stiff and just hurt all of the time. Some times it can be incapacitating and for others is a minor inconvenience, but most people with fibro are very uncomfortable. I share this so you can see that we may have pain from different sources but we can certainly understand how you feel trying to deal with pain.

I do with you good luck at the Childrens' hospital. Your parents must be wonderful people to work so hard to find help for your pain. We do have younger people here also and I'm sure some will be by to chat.

Warmest hugs,
Gravitation is not responsible for people falling in love.
Albert Einstein

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

New Member

Date Joined Apr 2010
Total Posts : 1
   Posted 4/29/2010 7:57 PM (GMT -6)   
Hi Student,
I'm not familiar with your condition, but I know chronic pain all too well. I too am brand new here. I think it will help both of us to stick around. I think one of the worst parts of living with chronic pain is the isolation it creates. Maybe this site will help with that, which in turn could help depression. Anyway, know you're not alone. Best wishes.

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 4/29/2010 10:54 PM (GMT -6)   
Hello Student 94 and Loriland22! Welcome to the CP forum! You both have come to the correct place for support.
Student, I' so so sorry to hear of your troubles. I don't know anything about your condition, but I'm sure someone here will. Keep checking this forum for replies often, as it takes time for members to see it sometimes.

Loriland22, would you start a new post and introduce your self as well, and tell us a little about yourself. We like to meet new members, and want to make sure they are introduced properly.

We welcome you both!
I'm headed to bed right now, but will check in with you both in the morning. Good night! :)

SE :)
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.

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