Who else on this board has TMJ, please I'm losing it!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jan 2010
Total Posts : 21
   Posted 4/30/2010 5:26 PM (GMT -6)   
Stiff neck, pressure around the left eye, vertigo, headaches, jaw pain (they have start popping lately). It's been around 2 months. I know I clench my teeth at night but it can't explain all those symptoms and I don't have the money for a dental plate (950$!!) I saw a dental surgeon and he said it was my upper back that was the cause. It doesn't make sense!!I have been eating soup for the last 3 days, feel so weak....How do you live like that!!
So desperate, please I need answers!!

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 4/30/2010 6:34 PM (GMT -6)   
Dany, I am sorry you are suffering so much. Is it possible to go to the drug store and try one of the over the counter devises you use as a night splint in your mouth? I think they probably cost $20 or so and some are adjustable, but it would help you not grind your teeth at night and bring you some relief.

You don't say if you're on any medication, but you could try an over the counter muscle relaxant as well as Ibuprofen to get some pain relief. Also you can use magic bags or heat bags for around your neck and jaw to help relax.

I hope these ideas help. You might want to see if there is a dental college near you that might offer some ideas for treatment at a lower cost as well.

Good luck to you.

Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine, Cesamet, plus Vitamin D and Multi-Vitamin daily

Veteran Member

Date Joined Jul 2008
Total Posts : 2317
   Posted 4/30/2010 7:12 PM (GMT -6)   
I'd get a second opinion from somebody who specializes in treating TMJ. If you already saw an oral surgeon, find a general dentist who has treated at least a couple hundred TMJ patients. If you were seen by a general dentist, get the second opinion from an oral surgeon. They each have different understandings of the causes & treatments for TMJ. A lot of times the oral surgeons don't even charge for a consult.

I've never heard about TMJ being rooted in back pain. In my case, getting an occlusal night splint (hard plastic retainer like thing) not only helped my jaw, but my headaches, neck pain & pain traveling down my back to just below my shoulder blades. The nerves & muscles are connected so they can be related, but I've just never heard of the issue in the back being the root cause. If it is rooted in your back, then it would seem that a pain specialist or neurosurgeon would be the way to go. That just seems so strange. But what do I know?

Another thing that can sometimes help for the short term (if you think you will have more money in another year or two) is to get your teeth filed. Don't ask me exactly how it works, but it's totally painless & basically doesn't add any extra cost to a regular dental exam. They take some red chalky tape & have you bite down on it. Then they look for the red marks & shave off a very, very tiny amount of the top of your back teeth (just the ones with red on them). It makes it harder to clench or grind your teeth because your teeth are smoother. There's no visual difference. It won't last forever because eventually you will re-create the same problem, but they can do it 1-3 times before you need to look into another solution.

Pam's suggestion for the things in the pharmacy is also a pretty good one. I couldn't breathe with the thing, but they are not too expensive (mine was like $40) & I have talked to a few people who say they help. Sometimes sleeping on your stomach can help (as long as you don't have back pain).

take care,

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 4/30/2010 7:25 PM (GMT -6)   
   Dear Dany,
      I had a form of surgically enduced TMJ. I had complete re contstruction done by a maxillio facial surgeon due to extreme medical circumstances. The symptoms subsided in about 4 months (6 total to heal). I believe it was thanks in part to exercises, medicines, and of course my jaw healing from the surgical work. However, obviously I didnt have many of the aspects that often occumpanies TMJ because mine was surgically enduced,  nor was my circumstances long term. Here is info that may help...  



Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 4/30/2010 9:55 PM (GMT -6)   
Hello Dany! I have to agree with the suggestions you have received here, and think maybe you can buy one of the devices that MsBunky suggested. I remember full well the pain associated with the TMJ pain. It is horrible to live with.
My fix was a simple one, in that I just quit chewing gum or crunching ice.

I don't know much about your health care or lack of it in Canada, but I sure hope you can get it looked at soon. Did you speak with "Tmjpain" about it when you two met last week?

Let us know what course of action you take next, as we all want to learn.

Post as much as you want, and I know that in itself can helps sometimes.
Maybe sleeping on one of those special formed pillows made to support the neck will help.

DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 4/30/2010 11:20 PM (GMT -6)   
Oh Dany, please call me so i can help you. Did i give you the number of the tmj specialist in Longueuil?? remind please as i have no memory. You need to see him ok ASAP and tell them that.
Have you had MRI done of your head, neck, tmj's, back?? you need to get this done for answers. Demand them from your gp.
Try some heat around your mouth and cheeks to relax these areas. I have ice on my head all the time which helps me with my horrible headaches. It freezes my head so i try to think of that and not the pain. Try heat on your head, it may work for you instead of ice packs.
Not to knock down other members' ideas, but I have done it all in my ten years of this. Please don't buy one of the over the counter mouthguards. Not the right thing to do. You could do more harm than good. Please see the DR. i told you about. Sleeping on you back is best because otherwise you are putting pressure on your jaw when you lie on your side of your stomach(which means your jaw is on the pillow. What kind of pillow do you sleep on? Try a water pillow. That's what i have had for seven years now and it is great. Even my husband has changed to one. This pillow came highly recommended to me by my Head, Neck and Jaw Physiotherapist.
Talk to your dr. about trying a muscle relaxant medication if you have not already tried this, such as flexeril, perhaps some ativan to take on an as necessary basis(this is what i have on hand)or valium just to get over some rough times here for a couple weeks but not long term. Are you seeing your gp. regularly? This is important. did you get your deposit back from that mouthguard? have you done any forms of therapy? if not tell me and i can tell you some you can try as i have tried tons of them? also different specialty drs. too, i have seen them all and something might work for you even if it did not work for me. let me know, ok
I am still suffering immensely but i am trying to hang in there. One day at a time and sometimes it is one hour at a time. I have even had to do fifteen minutes at a time. You know that i have told you, that my faith is carrying me thru all this. i must stay strong. Please don't despair Dany. I knoow that is tough to do, I have been doing it for ten years and still looking my answer. My day will come and so will yours. We must be patient. God has a plan but he will do it in his own time!!! Please call me any time. i have been looking for you on yahoo but you have not been on. I know it is because you are suffering so much.

hugs and love
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
 Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada

Veteran Member

Date Joined Apr 2009
Total Posts : 856
   Posted 5/1/2010 3:41 AM (GMT -6)   
Hi Dany. I also have TMJ disorder. Would it be possible for you to get another opinion? It is really painful, and it can have many symptoms, but it sounds like you have so much going on. Did the specialist say what exactly is wrong with your upper back?

Is it possible for you to get a second opinion?


Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 5/3/2010 7:10 AM (GMT -6)   
Just a suggestion on the price. I had my dental device made for "whitening" plates. They are exactly the same thing, but WAY cheaper! You may try this.

Good luck
Retired Mom

Regular Member

Date Joined Apr 2010
Total Posts : 35
   Posted 5/4/2010 11:54 PM (GMT -6)   
I know what TMJ is believe me! Ive had to deal with this horrific chronic issue since i was a small child. I clinch and grind my teeth badly at night so much that i snapped the dentist made dental guard in half. TMJ has caused my gums to recede badly, as it has broken the enamel off of several of the teeth located near the gum line. It has caused me head aches, neck aches, you name it aches. I refused to purchase another 1000$ night guard; therefore I made a trip to the drug store and purchased the "doctors night guard", molded it and have used it ever since. (1 year ago) It has also lasted longer than the expensive one that i first spoke of. Also put warms compresses on your jaw muscles as well as a good shoulder neck massage will help to lesson or make the symptons as not so severe. My dentist tells me that the only fix to my problem is braces, in which I just cant seem to understand how this would be a fix. Anyway i hope this was helpful...also a good muscle relacer like flexeril at night time can help.

Veteran Member

Date Joined Nov 2008
Total Posts : 2859
   Posted 5/5/2010 9:00 AM (GMT -6)   

Hi!  I have suffered from TMJ for many years.  I grind my teeth and clench my jaw without realizing it.  I too have lost 2/3's of my gum line and cannot tell you how many times I have gone to the dentist with a toothache only to find out it's from clenching my teeth.  I finally got the $1000 mouth piece and it did not work for me.  I just bit through it in my sleep.  Now, there is nothing left of either joint and they make a crunching sound even when I talk.  I was told the trigeminal nerve runs through the jaw and that's why we have so much pain in other parts of our body...ears, teeth, back, head and nose.  I have a screaming toothache as I write this...it has a root canal in it so it's not the tooth...it's the gum around it that has receded and became inflamed.  I wish I had an answer that is helpful, but you are not alone.


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 2:02 PM (GMT -6)
There are a total of 3,005,698 posts in 329,254 threads.
View Active Threads

Who's Online
This forum has 161797 registered members. Please welcome our newest member, paulwhiff.
238 Guest(s), 5 Registered Member(s) are currently online.  Details
HeartsinPain, 18yearsandcounting, oregonhay, MacroMan, Shayanv