Oh Dany, please call me so i can help you. Did i give you the number of the tmj specialist in Longueuil?? remind please as i have no memory. You need to see him ok ASAP and tell them that.
Have you had MRI done of your head, neck, tmj's, back?? you need to get this done for answers. Demand them from your gp.
Try some heat around your mouth and cheeks to relax these areas. I have ice on my head all the time which helps me with my horrible headaches. It freezes my head so i try to think of that and not the pain. Try heat on your head, it may work for you instead of ice packs.
Not to knock down other members' ideas, but I have done it all in my ten years of this. Please don't buy one of the over the counter mouthguards. Not the right thing to do. You could do more harm than good. Please see the DR. i told you about
. Sleeping on you back is best because otherwise you are putting pressure on your jaw when you lie on your side of your stomach(which means your jaw is on the pillow. What kind of pillow do you sleep on? Try a water pillow. That's what i have had for seven years now and it is great. Even my husband has changed to one. This pillow came highly recommended to me by my Head, Neck and Jaw Physiotherapist.
Talk to your dr. about
trying a muscle relaxant medication if you have not already tried this, such as flexeril, perhaps some ativan to take on an as necessary basis(this is what i have on hand)or valium just to get over some rough times here for a couple weeks but not long term. Are you seeing your gp. regularly? This is important. did you get your deposit back from that mouthguard? have you done any forms of therapy? if not tell me and i can tell you some you can try as i have tried tons of them? also different specialty drs. too, i have seen them all and something might work for you even if it did not work for me. let me know, ok
I am still suffering immensely but i am trying to hang in there. One day at a time and sometimes it is one hour at a time. I have even had to do fifteen minutes at a time. You know that i have told you, that my faith is carrying me thru all this. i must stay strong. Please don't despair Dany. I knoow that is tough to do, I have been doing it for ten years and still looking my answer. My day will come and so will yours. We must be patient. God has a plan but he will do it in his own time!!! Please call me any time. i have been looking for you on yahoo but you have not been on. I know it is because you are suffering so much.
hugs and love
Chronic, severe and continuous bilateral temporal headaches since April 2000.
Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada