~Monday Morning Roll Call

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Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 5/3/2010 11:45 AM (GMT -6)   
  Dear Family,
     Well, it is another beautiful Monday morning. Thou I would wish nothing more than to sit and enjoy some quiet time on the patio... There is much work to be done. Many tasks that need to be accomplished..and of course, Doctors to see.
     Before we get too caught up in our weeks I want to know How are you doing? What is schedualed for you this week? And MOST important, How are you feeling?
     Take a few moments if you can and give us an update
*warmest huggs*



Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 5/3/2010 1:02 PM (GMT -6)   
Oh Lord! I went back to work, and at mid day I'm totally worn out! :(
I'm not in that much pain, but just very tired, and will hit the sack as soon as I get home!
     SE :(
DDD (Degenerative Disk Disease) Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion L4-L5,L5 S1 March 5th 2010, Four cortisone injections Tendinitis in Elbow.

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 5/3/2010 1:20 PM (GMT -6)   
I'm still in a  lot of pain.  Got to call pt today and cancel appointment for Wednesday.  I don't have any other appointments this week.  I can't get up the courage to call the PM dr. about my pain.  I'm having a hard time doing it.  I always have a hard time standing up for myself. sad    I'm really tired of this.  I hope everyone is having a lpd.
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 5/3/2010 1:40 PM (GMT -6)   
SE, try to take it easy if you can and don't push yourself. Perhaps full days are a bit much right now and part time might be easier? I don't know if that's possible, but maybe worth a try. I'm sure glad to hear you went back today though...that's a great sign of progress.

Loretta, please don't be afraid to ask for what you need. How are you to manage and function in your life if you're in too much pain?? Ask your doctor for what will help you and don't feel like you don't deserve the help. You're no good to anyone else if you're not good to yourself first.

I am feeling okay right now. I seem to have found the right types and dosages of meds, so I'm getting continual relief to keep the pain at an easy 2-3. The biggest problem for me right now is the side effects of the drugs, especially the dizziness and drowsiness. I was in bed until 11am this morning, just dozing off and on...and I'm still tired when I wake up (I'm usually up and down through the night, not able to sleep). It's hard to get motivated to do anything, but I am faithfully doing my AquaFit (going tonight) and enjoying that.

No real plans this week other than working on a website for my church that I'm redoing. I'm also attending a paid focus group tomorrow night - discuss my thoughts about Road Safety for 90 minutes for $70 in cash at the end. I've done these a few times and the pocket money sure is handy.

hugs to all, and here's to a good week with easy to manage pain days!!!

Conditions: Fibromyalgia, Chronic Pelvic Pain, Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries:[ Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications:Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine and Cesamet, plus Laxaday, Vitamin D and a Multi-Vitamin daily

Regular Member

Date Joined Mar 2010
Total Posts : 132
   Posted 5/3/2010 3:48 PM (GMT -6)   
This week, I'm getting ready for the homeschool co-op to finish up for the year. I'll administer tests and calculate grades and all that fun stuff. Besides that, I'm recovering from having company this past weekend. I'm tired.

As for pain... I'm in it this week. I'm not sure what happened. I woke up Sunday morning hurting, and the pain meds are barely taking the edge off. I have an ESI scheduled for next Monday. I'll just have to take it easy until then.

Hugs and hope for PFDs!
DDD (4 levels- L2-3 thru L5-S1)

Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 5/3/2010 4:30 PM (GMT -6)   
Unfortunately not great , the last two days have been high pain days for me and I don't know why .I understand the hip thing but my knee and shoulder ache too it really is a bummer.I'm dealing with it but I guess I was spoiled by my recent good fortune pain wise , I guess this is just a not so gentle reminder that ''there will be pain ''! Going to see my folks this week , me and my brother drive down together and thats always cool so I'll do my best and hope for great weather!!!Mikel , luv to all !

HIV+ , Need hip replacement , have a cellulitus like condition on leg that is stubborn , using anti-biotics to try to get rid of but its stubborn .Started eating completley healthy juicing every day , no sugar , taking vitiamins and anti-oxidents , virigin coconut oil ,only veggies and fruits mostly , no red meat .feel better.Meds:viracept truvada,indothemicin. Pain from hip and leg use cane or rolator to walk .                                                                                                                 

Regular Member

Date Joined May 2010
Total Posts : 40
   Posted 5/3/2010 4:31 PM (GMT -6)   
I am hanging in there... I had a difficult morning but it's midday here in Northern California so at least I'm halfway done with the day. I just finished a 30 min walk..

I have two appts on Friday. One with my therapist for my depression and one for my physical therapist for the chronic pelvic pain that I have. Do many of you suffer from depression? Do you have a lot of support at home with your friends and family? How do they help you with your pain? I'm curious to know...


Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 5/3/2010 6:26 PM (GMT -6)   
Hey Stephanie , I see a pain therapist who helps me with the emotional side om my health challenges .I have one brother who lives 15 min away and we're best friends , I'm also dating a woman who lives about 20 mins away .Having people to support you is important as is self - exploration , seeing a therapist is important I think because they are trained to guide you thru your depression .I first confessed everything to anyone I needed to .No one ever knew everthing about me , I always hid part of me so I felt I was really never accepted for me , I confessed all to my brother and he still loved me .I felt much better inside , They can help you get things out you've been carrying around for years .I felt so clean and light after and I began to try to build a life .Yes there is help out there my friend , please go for it , you are worth it !! Mikel

HIV+ , Need hip replacement , have a cellulitus like condition on leg that is stubborn , using anti-biotics to try to get rid of but its stubborn .Started eating completley healthy juicing every day , no sugar , taking vitiamins and anti-oxidents , virigin coconut oil ,only veggies and fruits mostly , no red meat .feel better.Meds:viracept truvada,indothemicin. Pain from hip and leg use cane or rolator to walk .                                                                                                                 

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 5/3/2010 7:54 PM (GMT -6)   
I'll be a lot better once the semester is over. Tomorrow is my last day of classes & my thesis is due on Wednesday. My thesis is 99% done, I just have to make a few minor changes tomorrow & then have a printing marathon tomorrow night (it's 85 pages & the department requires 4 printed copies, plus I want some for myself).

I've been dealing with the pain by thinking about my upcoming stimulator trial. 25 more days. :-)


Veteran Member

Date Joined May 2008
Total Posts : 705
   Posted 5/3/2010 10:42 PM (GMT -6)   
Sorry I missed this earlier...very busy at work
Pain increased this week. Doctor upped my meds to .15 mg of oxy, I really don't feel any difference?? My appointment is in 3 weeks, hopefully by then the increased med's will be in my system long enough to get additional relief. No appointments for me this week.

Hope everyone has a great week!!
Taking it one day at a time.... 

Regular Member

Date Joined Mar 2010
Total Posts : 39
   Posted 5/5/2010 7:50 AM (GMT -6)   
I've woke up with a pulse.  From here it's pure gravy.  The yard is mowed (thanks to my wife) so my birds are going crazy out my study window as they look for their morning breakfast and it looks like no rain so I won't get all messy and dirty if I go out and run some errands.  Since I'm wheelchair bound, this always makes my day easier.  My housekeeper will drop by for 4 hours today and take care of some chores I just can't quite pull off from my sitting position and I haven't found any hair balls from the cat yet.  Not a bad day, and the week isn't looking bad either.
Sure I could focus on the fact that pain woke me up early, but instead I'm thankful I enjoyed the sunrise.  There's always something good to be found in the day, it's just some days we have to look a little harder.  Hoping the same for everyone else too, Bob.
After an accident in  1997 crushed the nerves in my pelvis, halfway down the calf and at the fibular head (knee), my left leg slowly started to turn color from the foot up, along with swelling and temp change.  Within 2 weeks I was diagnosed with RSD.  By 1999 I landed in a wheelchair and started a life taking narcotics all the time. In 2004 I got an Intrathecal morphine pump &5 years ago the RSD spread to my right leg and has done around 80% of the damage it did to my left leg in half the time. 1 1/2 years ago I went septic, and the infection did go body-wide.  After 2 days in the hospital I then had a clot in my lungs.  Both should have killed me, but this time I got lucky.  Meanwhile I've been battling blood clots for the last 4 years.  A year ago my left leg was ampuated above the knee after ging septic.  Guess that about say's it all.  Bob.

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 5/5/2010 12:36 PM (GMT -6)   
   Dear Michael,
      I am so sorry to hear you are having such a hard time transitioning back to daily life. But.. I want you to know you are really working very hard and it shows. Were I in your shoes I would not have made it as far as you have in such a short amount of time. You are striving to do your very best and it shows. You are recovering amazingly.  Try to not be hard on yoruself to much. You are working so hard and doing a great job! I dare anyone to recover as well or as quickly as you have! Take care friend and big hug to your wonderful wife
   Dear Loretta,
      I am glad you canceled your appointment. I hope your body is able to recover from this falre... is it really a flare? Or has your pain increaded overall? I don't mean to worry you or anything of the sort. But I had this thought that perhaps your pain levels are increased overall. I know, you above all others don't want to admitt you might need some help. You are SO stong willed!  But, I think its time to have a talk with your doctors about how much your pain has progressed. I wont say any more than that. I know you already have ALOT on your plate. I know you work very hard every day even when you should be resting. Take care of yourself and know you are in our hearts here.
   Dear Pam,
     Oh what a releif! I am so glad to hear you pain is going down. about darned time. You have had to endure so much it is about darned time something went well. I know you say your are dozing till 11am, but really your body has a full year of no real sleep, it will take time for your body to realize it is in recovery mode. Besides, you deserve some rest and extra few hours to rest.
      Okay, so am I the only one? I am so jelous! I want to go to Aqua Fit with you!!! hehe. Take care of yourself and don't over do it too much. You are in our prayers
   Dear Beth,
       If you wernt tired after the crazy week you had last week I would be worried! Both sets of grandparents, formal events, and hecktick work schedual?!?! Give your a body some credit, I think even a non CPer would have had a hard time keeping up. You have had so much going on this past week I am in awe. Now, do yourself a favor and plan a "me day". You have earned it!!!!
   Dear Mike,
     Gosh, I am so sorry you are in so much pain. I don't think your were spoiled at all BTW. Much deserved low pain days more like. I know you hate to have to take the stronger pain meds, but I think the amount of pain your in calls for the heavy hitters. Are you still going to massage weekly? If not a quick appointment might help.
     Oh you are a man after my heart for sure! I am thrilled you are going to see your Mother for Mothers Day! But, don't over do it! Have a nice time on your trip and don't go looking for mischief with your brother! ..and made it to postal office so pack should show up soon, btw. *hugg*
   Dear Stephanie,
      Well, I take antidepressant...rather large dosage. Also, I had help re-building my life and who I am as a person thanks to my pain psychologist. I am given a mental health eval regurlarly now that I am done with therapy. It that what you mean?
      Yes, my husband is very supportive and was part of the process with me. It was important he was on board and learning with me. ...besides, probably would have been odd if I were growing into someone different and he wasnt a part of the process. Would be like living with a stranger, no?
      As for the family question, my husband is my only family. I think his parents know I sought help to re define my life. I know everyone around me knows I am changed considerably. Not just physically, I mean the inside "me". It takes alot of work to take everything that makes you.."you" and mourn the loss of you, give yourself a clean slate, then rebuild and re define all aspects about yourself and your environment. I could not have achieved any of it on my own without the assistance of my psychologist to guide me step by step.
   Dear Skeye,
      Oh! How exciting! this is it! CONGRATULATIONS!Your last week. Gosh, you have worked so very very hard all year. Despite everything that has been put in your path you have over come all the obsticles. I am in awe and I hope to achieve the same level focus and determination some day.
     When is your trial? I know it is soon. Can't seem to recall when? I hope the trial implant goes well and that you achieve good results. Oh how wonderful it would be to have your diploma AND pain control. Only thing left is take over the world! hehe *warm huggs*
   Dear HopeGirl,
      I think I read that you are only taking it once ever 12hrs. Is that right? Are you sure you are going to be staying at that dose? Or is your doctor slowly increasing to a higher and more frequent level?
     You know I think that is one thing I hate about the "medication" aspect of pain control. The excruiciating, SLOW increases. My opioids arnt so bad, only 1.5 weeks per increace. But, my antidepressant is painfully slow to increase. Each one only by 25mg incraments and each increase taking 3 weeks to get used to the new level. smhair   Id have better luck frying an egg on the side walk.
     It is good to hear from you. I am glad your day (and hopefully your week) is off to a good start! It is of course unfortunate that we all wake frequently through the night, that pain is our early morning wake up. But, that is the life of a CPer. We all just try to do our very best, each and ever day and make the most of the time we have.
      For the folks who havnt given updates yet... Hop in and give us a line or two! Even if all you do is slamm the key board a few times, still, we like to hear from you. Here's hoping we all have more good days than bad!



Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



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