Dx'd with Polymyalgia Rheumatica

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Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 5/6/2010 5:33 AM (GMT -6)   
Went to my Pain Management doctor yesterday and once again saw the physicians assistant.  She did dx me with PMR but with some hesitance since my sed rates weren't elevated.  I did take information from reliable sources where it is found that 20% of patients with PMR will show no elevated inflammation rates.  I know I have other conditions but in the last 3 months things have gotten progressively worse (bed ridden on days) and I am showing all the classic signs of PMR plus I had excellent results from the steroid trial.  As soon as I got down to 10mg per day though the symtoms started coming back within 12 hrs.
She is starting me on 15mg for 4wks then we will start weaning down slowly from there.  I did make an appt with a rheumatologist for May 27th (she was highly recommended by a friend) for a second opinion.  I also asked to start weaning off the oxycontin since I have had little pain relief since starting it.  I'm up to 30mg 3xdaily and really don't want to go any higher.  She is starting me at 20mg 3xday for 4wks, using the oxycodone if the withdrawls symptoms get too bad.  Wish me luck!
I will call my lawyer today with the new dx to see what he wants to do as far as my SSDI appeal goes.  Pete, have you heard anything new regarding your appeal?
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3

Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 5/6/2010 6:49 AM (GMT -6)   
Hey brother Jag sorry to hear your having some difficulty bit you sound stong and determined .I hope all goes well with the legal aspects and your able to overcome all . Best of luck and stay stong brother . Mikel

Pete trips again!
Veteran Member

Date Joined Nov 2006
Total Posts : 1899
   Posted 5/6/2010 7:19 AM (GMT -6)   
Hi Jag, sorry to hear about this new stuff. I really hope they can get it figured out and get you on a propper med regiment! No> No word from SSD yet. I just have a feeling I'm gonna get the thumbs down again and am trying to ready myself for the regection! I don't think you will have any withdrawl syptoms by lowering your oxi. Thats not much of a drop. My new doc dropped me from 90mgs to 45mgs of oxicodone in a month. I hurt worse but no w/d at all!! I know everyone is different but I really thought I'd experiance some sort of w/d because I'd been on oxi for so long and always went up in doses never down!! I like this new doc but I hope she knows what she's doing and not just afraid of the powers that be about prescribing narc's, ya know?
Hang in there Jag!!! I'll be prayin for you!
Your Bud,

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 5/6/2010 9:54 AM (GMT -6)   
Hi Jag,

Sounds like you have a good doctor taking care of you - that's a blessing, isn't it! I hope that she'll be able to help you find exactly the medication(s) that will help you to feel better soon. I'm sorry about this new diagnosis - that must have come as a bit of a blow for you. Hang in there...we're all here to help you get thru it.

Hope you're able to enjoy the rest of your week and weekend.

Conditions: Fibromyalgia, Chronic Pelvic Pain, Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

Veteran Member

Date Joined Apr 2010
Total Posts : 2265
   Posted 5/6/2010 9:02 PM (GMT -6)   
Hi Jag
I'm sorry you have yet another diagnosis on top of everything else, but I am glad that you have a good dr. that will help you.  I wish you good luck with the rheumatologist.  I hope you're having a lpn.
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 5/6/2010 11:31 PM (GMT -6)   

I'm sorry you are dealing w/ so much.. but I am glad you went to the specialist, and the steroids are offering you some improvement.

I do wish you great luck w/ weaning off the oxcontin... as long as you do a slow taper, you shouldn't get in too much trouble BUT it's still not easy. I wish you luck. Let us know how it goes.

Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 5/7/2010 8:41 AM (GMT -6)   
   Dear Jag,
     Good morning *hugg* It is always good to hear from you. How are your pain levels today? Are you back to low pain now that you are evened out at 15mg steroids? I sure hope so. The steroids have been such a blessing for you. You have been in severe pain for a very long and it is about time you had some real results!
     I know I shouldnt be happy you have another diagnosis to deal with. But, I am greatly relieved knowing you are finally making head way towards better quality of life. I hope that the relief is long term and not short lived.
     I can tell you feel very positive about the new rheumatologist. I hope she is able to take your needs and diagnosis seriously. The last thing you need is to take another step backwords. So, lots of prayers that she is able to help!
     I hope you continue to have good days. It must be great to have your days back again! You are in our hearts ehre.



Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



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