Ahhhh thanks Dani. You make me feel so good. We sure need to hook up on a chat again one night soon.
I enjoyed our talk that night.
Yeah it doesn't make sense about my headaches, always in the temples, always severe pain, and no treatment or med or orthodontics touching the pain.
I see my gp on tuesday am so I will talk to her about a few things. Plus the urologist was an idiot and said nothing but come back in a month, said the cystoscopy showed no problems. He didn't even have my tests i had done that show I don't empty my bladder which is my problem, and I have to strain each time I void so I need to do catheterizations at home or what keep straining to void until I am done weaning off of the oxycodone and the bladder function comes back??????? anyways I will be talking to my gp about this too and much more.
Thanks to all of you for your support and prayers. I am just having such a difficult time coping with this pain.
Wishing everyone a wonderful weekend with low pain days.
Chronic, severe and continuous bilateral temporal headaches since April 2000.
Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to try to break the pain cycle by resetting the receptors
Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada