Just spent the last 8 days in hospital. My flare completely took over and I really stuggled all weekend. I felt like I'd been hit by a bus, could hardly left my head off the pillow and my pain was so bad I was vommitting. It was a long weekend and I struggled in to my doctor on the Tuesday. She couldn't believe the state I was in, I could barely string a sentence together.
She rang my specialist who admitted me straight into the rheumy ward, they pumped me full of prednisone pulses. 3 grams of prednisone!!! I had 3 pulses 2 days apart, plus massive doses of pain killers, plus hydrotherapy to get my joints moving, plus a head CT to check if the vommitting and headaches had any nasty cause. TG they are probable migraine origin from the stress of the pain. The neuro team put me on an antidepressant called dothiepin, but it strung me out so much I've stopped taking it already.
Plus the rheumy team then weaned me off the opiates and put me on tramadol slow release as well as break through. I feel totally strung out, got the shakes and oh so weak. I've been home since Wednesday but not capable of much at all. I've lost 7 kilos!!!
I just hope all these headaches arn't caused by my new RA med, Orencia. I have my next infusion this wednesday, so cross your fingers all goes well. I have a wonderful 2 week window on all this prednisone where my joints are good, I managed to walk up a flight of stairs. I'm ridiculously weak but it didn't hurt! Just the headache to contend with now, its affecting the vision in my right eye, sort of blurry around the periphery.
It was one of the scariest flares I've ever had, I felt soo sick, seemingly even my liver was swollen, I had blood in my urine, ,my whole body was affected. I never realised it could get that bad. Pain is such a horrendous thing, usually I can compartmentalise it but it just got too much, too many joints and organs involved. Really frghtening.
Anyway, I'm back and pleased to be here even with the migraines... best wishes to all, golitho