I'm so sorry your sister is in such misery. The one thing I would do is get yourself to a teaching/university hospital. They are on the cutting edge of medical technology and will not give up until they do everything known to help ... and then some. In the Fibro 101 thread at the top of this listing is that thread. But here's the link so you don't have to look. Call the one nearest you and ask about
getting in touch with a physician who can help . These folks are all about
helping people with hard to diagnose cases.
Gravitation is not responsible for people falling in love.
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.