I am 51 years old and usually psot on the fibro board.
I was diagnosed with fibromyalgia in Feb of 09 although the pain and fatigue came on in July of 08 after having a hysterectomy.
The Rheumotologist who diagnosed me said that I should be fine with the meds I am on - (Lexapro for severe panic disorder) and didn't recommend that I change or take anything else. He did give me a scrip for 10 hydrocodone per month. At first, I never took them but then I started to be in much more pain and used the 10 per month. After a few months, he decided that he didn't want me to take them anymore so he jsut stopped precribing them.
I went to my primary and she was very understanding. She knows that I am not abusing them and she gave me a scrip for 2 per day and Zanaflex at bedtime. My scrips were lasting almost 2 months because I never take them while I'm at work. Well, then she went on early maternity leave and I was completely cut off. The doctors at the practice wouldn't prescribe anything for me and asked if I would see a new rhemotologist. Fine, I went to see her and she basically told me that fibor is all psychological! Is this woman really a doctor or did she just wak off the street into the office that day? She then told me I should take Savella. When I called my psychiatrist, he said that I could not take it as it could interact badly with my other meds. Forty bucks of a copay down the drain there.
Then I called the primary's office again, just asking for any help. They set me up with a new rheumotologist - the appt was over a month away! I asked them if they could give me anything for pain and they said no.
Then I became desperate - I actually went to the ER because I didn't know where to turn, the doctors I had access to wouldn't help me! Well, big mistake. The docotr there basically made a predetermination of me before she saw me and came in yelling at me, telling me that I was on too much medication, that I had access to other doctors, why was I wasting ER time, etc. She made me feel like a piece of crap! I tried to explain to her what was going on and she acted like I was some sort of junkie. It was so demeaning. Finally, she called the practice and foudn out that all of my doctor's patients who had been prescribed narcotics had been cut-ff and that the doctors at that practice "did not want anyone there that suffered from chronic pain" - seriously? You don't want to help sick people? Then why are you a doctor?
Since then, I have found a new primary. She didn't prescribe hydrocodone either but she knows I have the appt with my new rheum. She did mention that she's not even sure that the fibro diagnosis was right. She thinks I might have polymyalgia rheumatica. At least she listened to me and did prescribe my Zanaflex.
Anyway - my appt with my new rheumotologist is now Wednesday and I can't wait. I hope I'm not disappointed and that he is able to help me.
Oh, and by the way, I wrote a letter to the ER about the way that doctor behaved towards me and got a call from the head of ER Friday. HE was awesome and he told me that he was going to talk to her about it and that he doesn't expect that she will ever treat someone that way again.
Sorry to go on and on and thanks for listening to me!