In severe pain and exhausted!!!!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined May 2010
Total Posts : 40
   Posted 5/11/2010 3:15 AM (GMT -6)   
I have a 12 hour work day ahead of me and I am exhausted. I am in so much pain right now I can hardly stand it!!! To top everything off, I went to see my pelvic pain specialist today and she doesn't even know for sure this is what I have. I've been being treated for this for the past 3 years now!!! Are you kidding me?!?!! Now I have to go through all sorts of testing. I hate this. How do you sleep when you have so much pain? Any tips you can offer would be helpful. Also, I'd be curious to know what living with fibromyalgia is like. I've heard it can be pretty brutal. The doc thinks I could possibly have this but doesn't know for sure. Sorry, I had to rant... Thanks for listening.


Regular Member

Date Joined Jul 2008
Total Posts : 329
   Posted 5/11/2010 8:55 AM (GMT -6)   

I deal with horrid pelvic pain all the time and sleeping can be pretty impossible when it really gets going. One of my favorite tricks is to use a rice pack (heated up) to fall asleep with since heating pads can be dangorous. Another good trick is to trick camomile and lavender tea or if you can find it Cramp Bark. These all have anti-inflammatory properties and help to soothe the pain.

As for pelvic pain, what types of tests? I have been through more then I care to admit while we were searching fro the original cause of my issues. I have done laproscopies, MRI's, IVP, colonoscopies, bladder tests and many many more.

I ended up having to have a hysterectomy at 25 and they found I had a really bad case of adenomyosis (endometriosis that grows between the muscle strands of the uterus) as well as endometrisis everywhere else. We were very hopeful that the surgery would rid me of most of my issues but then my cat decided that I needed trip down the stairs and my life of chronic pain (pelvic, my neck is another story) started.

Hysterectomy at 25 : 4 laproscopic surgeries since 24

Cervical Stenosis between C 2 and C6 and two bulging disks located C2/3 and C4/5

Meds - Embeda 20mg 2x : Nucynta 50mg every 6hrs as needed day :Amrix 15mg 1x day: Pristiq 50mg 1x day


In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 5/11/2010 12:19 PM (GMT -6)   

I'm sorry you are in so much pain right now, and your body is so exhausted. I pray that the new meds will help you... have you started them yet?

Re: all the testing... I know it sucks going through all sorts of testing... but, in the end, I think it will be good for you to get more definitive answers to what's going on... that way, maybe it can be better treated. Like I said, though, I know how exhausting all the testing can be....and when you already feel awful, it's hard. What tests do you have coming up?

Re: sleep... the answer is that most of us have sleep issues... it's a vicious cycle of needing sleep so badly so our bodies can try to "repair" themselves... but not being able to sleep. Over the years, I've tried almost all of the sleep medications there are. I had side effects from many of them, some didn't work, some would work for awhile and then stop. Have you tried anything to help w/ sleep?

Re: fibromyalgia... I can only tell you what it's like for me. It's continual wide-spread muscle aches. It messes w/ my thoughts and memory. It's one of the things that messes w/ my sleep. It contributes to the depression/anxiety I feel. I know it's a huge contributor to the drop-dead exhaustion I feel at all times. I guess the best way to describe it, for me, is that it feels like a bad case of the flu... at all times.

I really hope and pray you can get some answers to all the pain you have. I really hope you feel better, Stephanie :)

Talk to you soon... --Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...

deb in indiana
Regular Member

Date Joined Aug 2005
Total Posts : 387
   Posted 5/11/2010 1:43 PM (GMT -6)   
iam so sorry the sleep issue is bad for me and i take a sleeping pill some times it works but as the pain i just try to keep busy and hope the meds kick in soon take care hope you get better soon deb

Regular Member

Date Joined Jan 2010
Total Posts : 492
   Posted 5/11/2010 1:57 PM (GMT -6)   
I hope your pain eases up soon. It's terrible pain. My pain has been out of control lately. I am seeing the dr on Friday . I also take a sleeping pill for insomnia. It is also a hit or miss with me sometimes it works ,sometimes it dont. Good Luck.
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis , spinal blockage ,gerd,gastric ulcer (2008), pernicous anemia , folic acid anemia and gallbladder removal 3/23/10.
meds: Ambien, prilosec otc,  ibuprofren,Ultracet, folic acid , b12 injections, zyrtec and benadryl.
Just added : folic acid supplement  1 mg a day for the next year and also b12 injections increased to once a month. pernicous anemia and  Folic acid anemia.

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 5/11/2010 2:23 PM (GMT -6)   
Stephanie, I am sorry you are experiencing so much pain right now...I can definitely sympathize. In the months that lead up to me leaving work on disability, I would be in so much pain, my husband would literally have to help me get out of bed.

What does Fibromyalgia feel like and what is it like to live with it? Well, here's my answers.

Fibromyalgia for me feels like a deep aching sensation that goes right to my bones. It's constant and never ever goes away. Take your finger and push it as hard as you can into your upper arm (on the outside, not on the bicep). Keep pressing as hard as you can and when you can't stand it harder. Now, take that sensation, and try to imagine every single part of your body feels like that, day in and day out. That's what Fibro feels like to me and that's without the flare ups, which feel 100X worse, and include complete and utter stiffness as well.

What is it like living with Fibro? Well, it's a conscious decision each morning to get up and face the day, knowing you'll be in pain. Sometimes, when I wake up but before I move, I can almost feel pain free...sometimes. But there is life to be lived and I'm needed in this world, so up I get, put on my smile, take my drugs and slowly ease my way into the day. I have to constantly rest and pace myself thru the day, and I rarely get to do all the stuff I want because I tire out too quickly. I had to learn secrets and tricks to maintain my reputation as the "go to" girl at work who can solve every problem, because my memory is shot due to Fibro fog.

It means struggling thru every single minute of the day to balance and manage all that has to be done. It means leaning how to perform in public so people don't see how bad things are for you. It means constantly having to live in a world where people don't understand how you can be in such agony because "you look great". It's emotionally wearing on the body as well as physically.

There are lots of hints and tricks and such to help, such as heat, rest, medications, exercise, etc. but it's often hard to drag yourself around to do these things. Personally, I think Fibro is one of the nastiest conditions out there, because there is generally never an outward sign of what you're going thru, so you're always dealing with your disease as well as people around you, and there never seems to be a break.

Finding a support group is one of the best things you can do. We understand because we live with it too. We know exactly what you're going thru, and it makes a difference when you can talk to others about what you're going thru and they get it.

I hope that you are able to find the right combination of medication, exercise and other treatments so that your pain might be relieved, and you can start enjoying life with less discomfort.

Conditions: Fibromyalgia, Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 20, 2018 8:50 PM (GMT -6)
There are a total of 3,005,290 posts in 329,211 threads.
View Active Threads

Who's Online
This forum has 161767 registered members. Please welcome our newest member, Titanium-Girl.
323 Guest(s), 7 Registered Member(s) are currently online.  Details
SoMuchFun, logoslidat, Kent M., GoBucks, Donjr, WalkingbyFaith, Saipan Paradise